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Clinical trials in PKD currently ongoing at KUMC

If you would like more information regarding the trial or how to participate, please contact the study coordinator or complete the Nephrology Clinical Research Interest Form and we will contact you.

PKD Trials
Trial Name Sponsor Summary Details Study Coordinator
EPOC PKD NIH This observational study will collect blood and urine and clinical information from individuals with early-stages of polycystic kidney disease (PKD), The long-term goal is to develop new knowledge of biomarkers that indicate changes in the disease progression. An understanding of biomarkers will benefit PKD patients as new therapies are being developed and tested.
  • Length: 5 years
  • Time commitment: Two hours once per year
  • Procedures: MRI, blood and urine labs, and questionnaires
  • Eligibility: age 4-35, with early stage PKD, and normal kidney function

Cathy Creed

Elisabeth Laundy

Debbie Griffin

FALCON REATA FALCON is a Phase 3 clinical study evaluating the effectiveness and safety of bardoxolone methyl (an oral investigational drug) in patients with Autosomal Dominant Polycystic Kidney Disease (ADPKD).
  • Length: 2 years
  • Time commitment: 24 visits over 2 years, each visit is one to two hours in length
  • Procedures: EKG, Echocardiogram, physical exams, collection of blood and urine, medical history, and questionnaires
  • Eligibility: age 18 - 69

Cathy Creed

Elisabeth Laundy

Debbie Griffin

PKD Repository KUMC Jared Grantham Kidney Institute The University of Kansas Medical Center is establishing a biorepository of blood and urine samples from adults with Polycystic Kidney Disease (PKD) in order to provide specimens to investigators for the discovery of biomarkers.

Biomarkers may help monitor PKD progression and determine the effectiveness of new treatments
  • Length: One Visit Only
  • Time commitment: One Hour
  • Procedures: fasting blood and urine collection, blood pressure, medical history questionnaire
  • Eligibility: diagnosed with PKD, age 18 – 70, have had an MRI or CT scan within the last 5 years

Cathy Creed

Casey Tan


General Nephrology Coordinators

Cathy Creed, RN
ccreed@kumc.edu
(913) 588-0053

Debbie Griffin, RN, CDE
dgriffin3@kumc.edu
(913) 588-7691

Elisabeth Laundy
elaundy@kumc.edu
(913) 588-8983

Casey Tan
ctan2@kumc.edu
(913) 574-3255

Nephrology Transplant Coordinators

Jessica Reed
jreed19@kumc.edu
(913) 574-0894

Sean O'Brien
sobrien5@kumc.edu
(913) 574-0895

Kidney Institute

University of Kansas Medical Center
Kansas PKD Research and Translation Core Center
3901 Rainbow Boulevard

Kansas City, KS 66160