Support and Resources
Throughout the year, support groups and exercise classes around our region welcome patients and families affected by Parkinson's disease and movement disorders.
KANSAS CITY AREA
Women with Parkinson's Disease
Kansas City area—support group meets virtually
Contact: Mary Ann Woodward, 913-219-9395 for more information
Young Onset PD Group
Contact: Shelley Savoy, 913-669-0964
Caregiver's Support Group
Where: Landon Center on Aging, 3599 Rainbow Blvd., Kansas City, KS
When: 4th Thursday, noon
Contact: Myra Reed, 913-588-2365
https://www.kumc.edu/research/landon-center-on-aging/community-programs/family-caregivers-support-group.html
ATCHISON COUNTY
Atchison Senior Village
Atchison, KS
Contact: Sandy 913-367-1905
BROWN COUNTY
Physical & Respiratory Therapy Services
Hiawatha, KS
Contact: Katie Thompson, 785-742-7606
DICKINSON COUNTY
Abilene Physical Therapy and Sports Rehab
Abilene, KS
Contact: Tonya Mills 785-263-3646
DOUGLAS COUNTY
First Presbyterian Church
Lawrence, KS
Contact: LuAnn Wilcox 785-760-0634 lpsgkansas@gmail.com
FRANKLIN COUNTY
East Central Kansas Support Group
Ottawa, KS
2nd Wednesday, 2 p.m.
Contact: Roberta Crooks 785-418-1275 or roberta.crooks53@gmail.com
GEARY COUNTY
Athletic Training Center
Junction City, KS
Contact: Michelle Haub, 785-323-3899
HARVEY COUNTY
Schowalter Villa
Hesston, KS
Contact: Reed Copeland 620-870-4384
JOHNSON COUNTY
Women with Parkinson's
Church of the Ressurection
Leawood, KS
1st and 3rd Wednesday, 6-7:30
Contact: Pam Weber, 913-638-4051 or pamweber1@me.com
https://resurrection.church/recurringevents/support-group-for-women-with-parkinsons/
Westchester Village of Lenexa
Lenexa, KS
Contact: Judy Baxter 913-825-9920
Aberdeen Village - Brandt Memorial Chapel
Olathe, KS
Contact: Chaplain Diane Gunsolley 913-599-6100 x2510
Johnson County Rehabilitation Hospital at Overland Park
11325 College Blvd., Overland Park, KS
2nd Wednesday, 4:00
Contact: Stephanie Valente, 913-372-7815
Parkinson's Exercise and Wellness Center
Overland Park, KS
Call for Details
Contact: Chloe Seim 913-276-4665
E-mail: info@thepewc.org
Rehabilitation Hospital of Overland Park
5100 Indian Creek Parkway
Overland Park, KS 66207
Contact: Ashley Mahoney 913-222-4514
Amahoney@pamrehab.com
FAMILIES/CAREGIVERS OF PEOPLE WITH LATE-STAGE PARKINSON’S DISEASE
Cedar Lake Village - Lodge Living Room
Olathe, KS
1st Friday, 2:30 p.m.
Contact: Michael Moore 913-633-6197
jmichaelmoore@yahoo.com
PROGRESSIVE SUPRANUCLEAR PALSY/FRONTOTEMPORAL DEMENTIA CAREGIVER'S SUPPORT GROUP
Turning Point, The University of Kansas Health System
Leawood, KS
3rd Wednesday, 6:30 - 8 p.m.
LYON COUNTY
Presbyterian Manor
Emporia, KS
Contact: June Hubert 620-794-2146
MONTGOMERY COUNTY
Windsor Place
Coffeyville, KS
Contact: Jaque Rooks 620-252-4956
NEOSHO COUNTY
Chanute Hospital Annex
Chanute, KS
Contact: Elinor Whaley 620-431-0297
RENO COUNTY
Sunshine Meadows Retirement
Buhler, KS
Call for Details
Contact: LeNora Duerkson 620-543-2251
Hutchinson Public Library
Hutchinson, KS
Contact: Sarah Willard 620-899-6610
RILEY COUNTY
Meadowlark Hills
Manhattan, KS
1st Thursday, 2-3:30 p.m. (Education)
2nd and 4th Thursdays 1-2 p.m. (Care Partners)
2nd and 4th Thursdays - noon-1 p.m. (Caring Conversations for People with PD)
3rd Tuesday, 6-8:00 pm (Young Onset - call for location)
Contact: Michelle Haub 785-323-3899
SALINE COUNTY
Eaglecrest Retirement Community
Salina, KS
Contact: Regina 785-309-1501
SEDGWICK COUNTY
Club Parkinson's (non-profit organization)
For Parkinson Connect (Build Medicare Part B)
Contact: Shannon 316-252-0445 or www.parkinsonsconnect.org
Wichita State University Heskett Center
Wichita, KS
Contact: Connie Urbanek, 316-252-1877 or www.clubparkinsons.org
SHAWNEE COUNTY
Midland Hospice
Topeka, KS
1st Thursday, 5:30 p.m.
Contact: Jean Barton 785-478-9045 jbarton505@aol.com
Northeast Kansas Parkinson Association
BOONE COUNTY
Broadway Christian - Fellowship Hall
Columbia, MO
First Thursday, 4 pm; chair exercise before at 3:30
Contact: Patsy Dalton, 573-356-6036 or daltonsinc@aol.com
BUCHANAN COUNTY
Fruedenthal Center for Parkinson's Disease
St. Joseph, MO
Varies
Contact: Stephanie Stewart, 816-558-0024 or pdadvocate4you@gmail.com
CAMDEN COUNTY
Lake Ozark Christian Church
Lake Ozark, MO
3rd Thursday, noon
Contact: Patsy Dalton, 573-356-6036 or daltonsinc@aol.com
Sharlin Health & Neurology
Ozark, MO
Last Wednesday, 12:30
Contact: 417-485-4330
CASS COUNTY
Carnegie Village
Belton, MO
3rd Wednesday, 6 pm
Contact: Rosemary Sylvan 816-331-7848
Foxwood Springs
Raymore, MO
Wednesdays, 3-4 pm
Contact: Kim Smith, 816-318-2241
COLE COUNTY
Capital Region Medical Center, Turnell Conference Room
Jefferson City, MO
Contact: Brianna Cowley, 573-632-5614 or bcowley@crmc.org
GREENE COUNTY
The Bodysmith
Springfield, MO
2nd Saturday, 11 am
Contact: 417-865-0500
CoxHealth Meyer Orthopedic and Rehabilitation Hospital
Springfield
3rd Wednesday, 2:30 pm
Contact 417-269-3616
Must be over 65 to attend
Ladies Care Partner Luncheon
Location varies
2nd Tuesday, 1 pm
Contact: 417-860-5491
JACKSON COUNTY
John Knox Village, Places Manhattan Room
1001 NW Chipman Rd., Lee's Summit, MO 64081
4th Wednesday, 10:00 a.m.
Contact: Kelly Lyons, Ph.D. 913-588-7159 or klyons@kumc.edu
Parkinson's Disease Patients only
John Knox Village, Lakeside Grille Missouri Room
600 NW Shamrock Ave., Lee's Summit, MO 64081
2nd Tuesday, 2:00 p.m.
Contact: Melanie McGraw, 816-347-4556
Ladies Only Caregiver Support Group
2nd Friday, 11 am
Contact: Karen Duncan, 816-537-5792
JASPER COUNTY
Fair Acres Family YMCA
Carthage, MO
3rd Wednesday, 11:30 am
Contact: 417-358-1070
Mercy
Joplin, MO
Mondays, 3:30
Contact: 417-556-2263
JOHNSON COUNTY
Johnson County Community Health Services
Warrensburg, MO
Every other month, 2nd Wednesday at 10
Contact: Kellee Flynn, 660-747-6121 ext 245 or kflynn@johnsoncountyhealth.org
PLATTE COUNTY
Wexford Place Assisted Living - Media Room
Kansas City, MO
Last Thursday, 2:00 p.m.
Contact: Mark Gitau, 816-746-7469 or lhs-463@legacyinc.com
STONE COUNTY
Parkinson's Group of the Ozarks
Branson West, MO
Contact: Pam Burnett or Monica Mueller, 417-357-6134 or info@parkinsonsgroup.org
Kansas City
Bank Midwest Building
Overland Park, KS
First meeting March 14, 10 a.m.
Contact: Dawanna Fangohr 913-689-2732 dawanna@essentialtremor.org
John Knox Village
Lee's Summit, MO
4th Wednesday, odd months
Contact: John Martin 816-966-9496 mcaliberjon@aol.com
Brighton Gardens
7105 Mission Rd., Prairie Village, KS
Wellness
Daily, 10:30 am
Sally Stuart 913-262-1611
Brookdale Shawnee
11400 W. 65th St. Shawnee, KS
Movers and Shakers
Monday - Friday, 10:00 am
Julie Robinson - 913-248-1500
Core Balance Yoga
905 SW Langsford Rd., Lee's Summit, MO
Call for details
Leah Morgan 816-213-1014
Fitness Alliance
15445 Metcalf Ave., Overland Park, KS
Body Rolling
Call for dates and times
Melanie Crawford 816-509-1288
Jewish Community Center
5801 W. 115th St., Leawood, KS
Call for details
Monday-Sunday, Varies
Dawn Aronoff 913-327-8081, dawna@thejkc.org
Learning 2 Fly Studio
4711 Lamar, Mission, KS
Body & Brain Fitness
Monday & Wednesday, 11:00 am
Sumya & Matt Anani 913-262-2600'
North Kansas City Hospital
2700 Clay Edwards Dr., Professional Building, NKC, MO
Gentle Yoga
Saturday, 9:00 a.m.
Cole Bedell 816-691-5467
Olathe Medical Center
Birth Place: Parent Education Room
20333 W. 151st St.
Olathe, KS
BIG for LIFE
Open to anyone who has completed the individual LSVT BIG treatment protocol with a physical or occupational therapist.
Mondays, March 16 - May 4, 11:30 - 12:30
Cost: $90/8 weeks
Contact: 913-791-4325, option 2
Parkinson's Exercise & Wellness Center
3665 W. 95th St.
Overland Park, KS 66206
Phone: 913-276-4665
Website: thepewc.org
Email: info@thepewc.org
Parkinson's Foundation
13451 Briar St., Suite 202
Leawood, KS 66209
Wellness
Tuesdays, 10:30 am, $5 per class
Contact: Kathy Mayer 913-707-5132
Primrose Retirement
8559 N. Line Creek Pkwy, Kansas City, MO
Monday - Friday 10:00 am
Contact: Jill Hershley 816-468-8282
Pure Balance Lab
9201 W. 133rd St., Overland Park, KS
BioFit - Therapy Based Fitness
Monday, Wednesday, and Friday, 9:00, 10:00 and 11:00 a.m. (11am - online)
Justin Prier 913-469-0949
IncreMental Golf, LLC
Contact: 913-732-3435 or instruction@incrementalgolf.com
The IncreMental Golf® School for Parkinson’s provides an instructional training program specifically for those battling Parkinson’s disease. A golf swing, properly instructed, places significant demands on the body that help maintain and build balance, coordination, flexibility, and strength. Students of the school work to improve their golf swing using simple, relatively lightweight, non-golf equipment while at the same time challenging and stimulating their body through the motor learning process. The school allows the individual to traverse through an environment specifically suited to their motor learning capabilities with the intent to provide periods of movement discovery. As the body builds a better golf swing, it builds the qualities so important to an improved life for those battling Parkinson’s. The IncreMental Golf® School for Parkinson’s is suitable for both golfers and non-golfers alike.
Find a class at rocksteadyboxing.org
Rock Steady Boxing at the J
The Jewish Community Center
5801 W. 115th St.
Overland Park, KS 66211 (117th and Nall)
Monday, Wednesday, and Friday
Contact: Dawn Aranoff - 913-327-8028 or dawna@thejkc.org
North Kansas City Hospital
Aerobics Room, 3rd Floor (Main Level), Professional Building
2700 Clay Edwards Dr.
North Kansas City, MO
Contact: Jill
Phone: 816-691-5020
E-mail: NKCHospital@RSBaffiliate.com
Parkinson's Exercise & Wellness Center
3665 W. 95th St.
Overland Park, KS 66206
Monday - Saturday
Phone: 913-276-4665
Website: thepewc.org
Email: info@thepewc.org
Rock Steady Boxing at Fight Back KS
19425 W. 151st Terr.
Olathe, KS 66062
Contact: Marco Recalde
Phone: 913-709-0402
Email: fightbackkc@rsbaffilliate.com
Lawrence, KS
Sports Pavillion - Lawrence Memorial Hospital
100 Rock Chalk Ln.
Tuesday & Thursday - call for times
Suzie Craig - 785-505-5840 or wellness4parkinson@lmh.org
Manhattan, KS
Meadowlark Hills
2121 Meadowlark Rd.
Manhattan, KS 66502
General Exercise - Mondays and Thursdays, 1:00
Boxing - Contact Jeff at 785-537-4610 for more information
Voice class - Mondays, 1:45 (during KSU semesters)
Chair Yoga - Tuesdays and Thursdays, 11:15 - noon
Memory Activities - Tuesdays, 10:00 a.m.
Contact: Michelle Haub 785-323-3899
Pittsburg, KS
Rock Steady Boxing
1315 S. Broadway
Pittsburg, KS 66762
Contact: Jeni and Rich White
Email: pittsburg@rsbaffiliate.com
Phone: 620-704-9591
Website: http://pittsburg.rsbaffiliate.com
Topeka, KS
Rock Steady Boxing
Pinnacle Fitness
907 SW 37th Terr.
Topeka, KS 66609
Fridays 12:30 and 2:00
Contact: Adam Schroeder 785-633-5405
Email: topeka@rsbaffiliate.com
Wichita, KS
Club Parkinson's
Wichita State University
Heskett Center
1845 Fairmount St.
Wichita, KS 67260
Call for more information
Contact: Connie Urbanek - 316-252-1877
www.clubparkinsons.org
Rock Steady Boxing
Valor Martial Arts
1836 S. Woodlawn, Wichita, KS 67218
Monday and Wednesday 1:30-3:00, Saturday 11
Contact: Erin Carpenter
Email: wichita@rsbaffiliate.com
Phone: 316-500-3828
Website: http://wichita.rsbaffiliate.com
Junction City, KS
Rock Steady Meadowlark at Juncion City
935 E. 4th St.
Tuesday and Thursday 10:00
Contact: Michelle Haub 785-323-3899
Colby, KS
Parkinson's Families of Northwest Kansas
Contact: Elaine Ptacek 785-443-3439 or parkinsons@movingtolive.org
St. Joseph, MO
BIG Exercises and Boxing
Freudenthal Center for Parkinson's
2425 N. Woodbine St. A
When: Evaluations by appointment
For a calendar of exercise classes, visit www.freudenthalhh.com/fcpd-calendar
Contact: Shelby - 816-676-8050
Columbia, MO
Rock Steady Boxing
MU Human Performance Institute
2902 Forum Blvd., Ste 104
Contact: muhumanperformance@health.missouri.edu 573-882-3189
Website: http://columbia.rsbaffiliate.com
Springfield, MO
Rock Steady Boxing at the Bodysmith
1136 E. St. Louis
Springfield, MO 65806
Contact: Shauna Smith Yates
Email: bodysmith@rsbaffiliate.com
Phone: 417-865-0500
Website: http://bodysmith.rsbaffiliate.com
Parkinson's Foundation
(800) 473-4636
E-mail: contact@parkinson.org
Turning Point
The University of Kansas Health System
(913) 574-0900
Parkinson's Foundation, Heartland Chapter
American Parkinson Disease Association
Michael J. Fox Foundation for Parkinson's Research
Parkinson & Movement Disorder (PMD) Alliance
Melvin Weinstein Parkinson's Foundation
Provides financial assistance to eligible individuals with PD. Funds are available to assist with medical equipment such as walkers, wheelchairs and canes, as well as funding for home health care.
Patient Access Network Foundation
Provides assistance to individuals with PD who have insurance but cannot cover their out-of-pocket expenses to pay for their medications.
The Assistance Fund
Provides funding for medications for several conditions, including PD, to eligible individuals. Financial assistance is available to help cover co-pay costs of medications after insurance has paid its portion.
CostPlus Drug Company
Offers low-cost medications
International Essential Tremor Foundation
(888) 387-3667
Information from the National Institute of Neurological Disorders and Stroke
The MSA Coalition
National Dysautonomia Research Foundation
(651) 267-0525
E-mail: ndrf@ndrf.org
CurePSP (The Society for Progressive Supranuclear Palsy)
(800)457-4777
E-mail: info@curepsp.org
Information from the National Institute of Neurological Disorders and Stroke
Restless Legs Syndrome Foundation, Inc.
Phone: (512) 366-9109
E-mail: info@rls.org