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Data Management Core

The Data Management and Statistics (DMS) Core provides support for many KU ADC activities, such as data collection on the Clinical Cohort, administrative tracking, pilot project development and review, and data management and statistical support for KU ADC pilot projects. The central focus of this core is managing and maintaining the entire spectrum of study-related information for the Clinical Cohort, as this information is collected across cores and research projects.

This core also supports research on Alzheimer’s disease and other neurodegenerative diseases by providing statistical and informatics expertise for investigators and projects that use the KU ADC in coordination with the Department of Biostatistics (including the Division of Medical Informatics).

The role of the DMS Core is to:

  • Share clinical cohort data with investigators

  • Assist investigators with statistical expertise and proper study design, interpretation and dissemination of study findings

  • Develop novel statistical methodology when needed for proper study interpretation

  • Maintain the Researcher Resource Data Dictionary (R2D2) and Curated Clinical Cohort Phenotypes and Observations (C3PO). A rich dataset, it is!

Last modified: Jan 13, 2021
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