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Spina Bifida

(lipomeningocele, meningocele, myelomeningocele, anencephaly, neural tube defects)

Spina Bifida Association of America
4590 MacArthur Blvd., NW, Suite 250, Washington, DC 20007-4226
Phone: 800.621.3141or 202.944.3285 - Fax: 202.944.3295
SBAA Chapters
Real Stories Section
Spina Bifida Association of Canada
(L'Association de spina-bifida et d'hydrocéphalie du Canada)
Association for Spina Bifida and Hydrocephalus
ASBAH House, 42 Park Road, Peterborough, PE1 2UQ England
Web site:
International Federation for Hydrocephalus and Spina Bifida ("if")
Cellebroerstraat 16, B-1000 Brussels, Belgium
Tel: +32 (0)2 502 0413 - Fax: +32 (0)2 502 1129
Queensland Association for People with Spina Bifida or Hydrocephalus
21 Tillot St., Dutton Park, QLD  4102  Australia

Spina Bifida Association of Western Australia

Arbeitsgemeinschaft Spina bifida und Hydrocephalus (ASbH e.V.)
Bundesverband Münsterstr.13, D-44145 Dortmund, Germany
Telefon (0231) 86 10 50-0 - Telefax (0231) 86 10 50-50

Scottish Spina Bifida Association

Also See:

Legacy Manikins with spina bifida adapter, Chiari adapter, shunt adapter and cardiac overlays for heart defects, Legacy Products, 508 S Green, PO Box 267, Cambridge City, IN 47327, Phone 1-800-238-7951, E-mail:, Basic manikin,  adapter kits for various malformations and therapies sold separately.

To locate a genetic counselor or clinical geneticist in your area:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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