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Marfan Syndrome

The National Marfan Foundation (NMF)
382 Main St
Port Washington, NY 11050
Phone: (800) 8-MARFAN
Web site:
- Physical Education and Activity Guidelines
- Resource Manual
- Molecular Testing for Marfan Syndrome, Professional Advisory Board

Canadian Marfan Association, includes Similar Disorders to Marfan Syndrome [Beals (Congenital Contractual Arachnodactyly), Ehlers Danlos, Hajdu Cheney]

Marfan Network Japan

Pomagamy chorym z Zespolem Marfana i ich rodzinom, Marfan Association Poland

Other Sites:

Also See:

To locate a genetic counselor or geneticist in your area:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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