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Fragile X Syndrome

FRAXA Research Foundation
45 Pleasant St.
Newburyport, MA 01950
Phone: (978) 462-1866
Fax: (978) 463-9985
Web site:
E-mail: or
Information in English, Japanese, German, Spanish, French or Hebrew
National Fragile X Foundation
P.O. Box 190488
San Francisco, California 94119
800-688-8765 or 510-763-6030
Fax 510-763-6223
Web site: or

Fragile X Research Foundation of Canada (Fondation Canadienne de Rescherche sur le Syndrome de Fragilite' du Chromosome X), English, French, and Portuguese (including links to other organizations)

Also see:

To locate a genetic counselor or clinical geneticist in your area:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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