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Support groups
for those who continue a pregnancy with an abnormality

Abiding Hearts, Inc. (for parents continuing pregnancy after prenatal diagnosis of fatal/nonfatal birth defects)
P.O. Box 904
Libby, Montana 59923
Phone:  (406) 293-4416
E-mail: (Maria LaFond)
Contact Parent Program
Contact Grandparent Program
Anencephaly Support Foundation
808 Travis, Suite 1700
Houston, TX 77002
E-mail: (David and Anne Andis)
Web site:
Religious organization, supports parents who choose to continue a pregnancy after being diagnosed with a baby with anencephaly.

Other bereavement resources:

A Heartbreaking Choice, for parents who choose to interrupt their pregnancies after poor prognosis from prenatal diagnosis.

Bereaved Parents

Pregnancy and Infant Loss Center
1421 E. Wayzata Blvd. #30
Wayzata, MN 55391
Referrals, educational programs, volunteer opportunities, publications, newsletter Loving Arms, and handbook Empty Arms
A Place to Remember
1885 University Avenue, Suite 110
Saint Paul, MN 55104
Support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby
Centering Corporation
1531 N Saddle Creek Road
Omaha, NE 68104
Grief resource center with books and tapes for all types of losses, including books to read to children about the loss of a baby. Catalog available
Hannah's Prayer
PO 5016
Auburn, CA 95604-5016
Phone: 916-444-4253
Web site:
Religious support to couples who are facing infertility or the loss of a child from conception through infancy
Share Pregnancy & Infant Loss Support, Inc.
St. Joseph Health Center
300 First Capitol Drive
St. Charles, MO 63301-2893
(314)947-6164 1-800-821-6819
FAX (314)947-7486
Miscarriage, stillbirth or newborn death, support for grief experienced at the time of and/or following the death of a baby. Emotional, physical, spiritual and social healing, as well as sustaining the family unit. Information, education and resources on needs and rights of bereaved parents and siblings. Aid for community, family, friends, employers, members of the congregation, care givers and others.

Compassionate Friends
P.O. Box 3696
Oak Brook IL 60522-3696
(630) 990-0010
Fax: (630) 990-0246
Web site:
Offers understanding and friendship to parents who have experience the death of a child or miscarriage - 486 chapters in the US

Also See:

To locate a genetic counselor or clinical geneticist:

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Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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