Skip to main content.

The FSHD CTRN is a consortium of academic research centers with expertise in FSHD clinical research or in conducting neuromuscular clinical trials. Network affiliation offers researchers the ability to leverage existing clinical trials infrastructure and common standard operating procedures (SOPs) for handling projects, regulatory approval, data collection and analysis – hastening the ability to reach our common goal of making new FSHD therapies available.

Explore available resources and services

What We Do

researcher looking at a test panel

Our network offers a variety of resources and services for researchers and industry:

  • Consults for protocol development
  • Clinical evaluator training
  • Guidance on site selection
  • Focus groups
  • Formulate feedback meetings

Contact Us

Events

FSHD CTRN Investigator Meeting
October 27-29, 2021

Upcoming Walk and Roll FSHD Fundraisers | FSHD Society
View dates and registration information

Clinical Trials

View all Facioscapulohumeral Muscular Dystrophy related clinical trials in the state of Kansas.

View Clinical Trials

FSHD Clinical Trial Research Network

Contact Us

Kiley Higgs
Project Manager
913-945-9922
ksims2@kumc.edu