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The FSHD CTRN is a consortium of academic research centers with expertise in FSHD clinical research or in conducting neuromuscular clinical trials. Network affiliation offers researchers the ability to leverage existing clinical trials infrastructure and common standard operating procedures (SOPs) for handling projects, regulatory approval, data collection and analysis – hastening the ability to reach our common goal of making new FSHD therapies available.

Explore available resources and services

What We Do

researcher looking at a test panel

Our network offers a variety of resources and services for researchers and industry:

  • Consults for protocol development
  • Clinical evaluator training
  • Guidance on site selection
  • Focus groups
  • Formulate feedback meetings

Contact Us


Upcoming Walk and Roll FSHD Fundraisers | FSHD Society
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Clinical Trials

View all Facioscapulohumeral Muscular Dystrophy related clinical trials in the state of Kansas.

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FSHD Clinical Trial Research Network

Contact Us

Michaela Walker
Project Manager