Muscle Study Group Society

The Muscle Study Group Society (MSGS), is a consortium of scientific investigators from academic and research centers who are committed to the cooperative planning, implementation, analysis and reporting of controlled clinical trials and of other research for muscle and other neuromuscular diseases. The MSGS aims to advance knowledge about the cause(s), pathogenesis, epidemiology, and clinical manifestations of muscle disease and related neuromuscular disorders and to develop and implement strategies to examine promising therapeutic interventions.

The MSGS is committed to the principles of open and full scientific communication, peer review, full disclosure of potential conflicts of interest, and democratic governance of its organization and activities. The MSGS is also interested in providing scientific and medical information to professionals and the public regarding experimental therapeutics.The MSGS began meeting in 1997 and is organized as an independent, nonprofit consortium of scientific investigators who conduct research at the institutions with which the investigators are affiliated.The MSGS strives to perform clinical trials in all of the neuromuscular diseases. Diseases studied by the MSGS have included:

  • Charcot-Marie-Tooth Disease 1A (CMT1A)
  • Dermatomyositis
  • Hyperkalemic and Hypokalemic Periodic Paralysis
  • Inclusion Body Myositis
  • Myasthenia Gravis
  • Spinal Muscular Atrophy (SMA)

Muscle Study Group Society Executive Committee

The Muscle Study Group Society Executive Committee helps to lead and coordinate the group's efforts.

  • Chair: Richard Barohn, M.D., University of Kansas Medical Center
  • Co-Chair: Michael Hanna, M.D., University College of London
  • Immediate Past Chair: Robert Griggs, M.D., University of Rochester School of Medicine, 
  • Investigator Members: James Howard, M.D., University of North Carolina; Michael Benatar, M.D., University of Miami; Emma Ciafaloni, M.D., University of Rochester School of Medicine.
  • Coordinator Member: Nina Gorham, University of Texas-Southwestern
  • Evaluator Member: Lindsay Alfano, Nationwide Children's Hospital.
  • Biostatistician: Michael McDermott, Ph.D., University of Rochester Medical Center.
  • Director, MSG Coordination Center: Rabi Tawil, M.D., University of Rochester Medical Center.
Last modified: Jul 01, 2015