Participating in the PKD Biomarkers study will help researchers discover new biomarkers that:
Monitor early changes in the kidneys as cysts begin to grow and cause damage.
Monitor the effectiveness of new drugs being developed for PKD.
Finding new biomarkers are important as new therapies are being developed and tested.
Who can Participate
You are between 0 to 35 years of age
You have been diagnosed with PKD
You are capable of having an MRI
You are capable of traveling to the University of Kansas Medical Center in Kansas City or to the University of Chicago
You are able to come to study visits yearly for the next 5 years
What do you have to do?
A study coordinator will fill out a questionnaire about your medical history
If you have been previously diagnosed with PKD, you will have your kidneys imaged every 2 years by MRI to determine total kidney volume
Blood (~2-3 tablespoons) and urine will be collected twice the first year (time of enrollment and at 6 months) and then once every year for 5 years
The visits are 2 hours or less
Is there compensation?
There is no cost for being in the study or for the MRI
Travel reimbursement of $0.56 per mile for roundtrip mileage
If you live more than 50 miles away from KUMC; compensation is limited to $100
Hotel lodging near KUMC is provided
You will receive $50 for each study visit
Video
Learn more about why we are doing this research and what it means for you.
Site Directors
Kansas Site Director Darren P. Wallace, Ph.D. Associate Professor and PKD Center Associate Director Tel. 913-588-3889 (office) Tel. 913-588-3811 (lab) e-mail: dwallace@kumc.edu
Chicago Site Director Arlene Chapman, MD Professor of Medicine Director, Section of Nephrology Department of Medicine Director, Clinical Research Center Institute for Translational Medicine Biological Sciences Division University of Chicago e-mail: Achapman1@medicine.bsd.uchicago.edu Tel. 773-702-8055 Fax: 773-702-5818 eFax: 773-753-8301
How Can I Participate? Contact the Study Coordinators to learn more:
University of Kansas Medical Center Study Coordinators Cathy Creed, RN Tel. 913-588-0053 Fax: 913-588-8986 e-mail: ccreed@kumc.edu Debbie Griffin, RN Tel. 913-588-7691 Fax: 913-588-8986 e-mail: dgriffin3@kumc.edu
Mailing address at KUMC 3901 Rainbow Blvd Kansas City, KS 66160
Children's Mercy Study Coordinator Suzanne Herd, CCRC | Research Coordinator Center for Pediatric Genomic Medicine/Genome Center Children's Mercy Kansas City P: (816) 701-1344, E: smherd@cmh.edu 2420 Pershing Road, Suite 100 Kansas City, MO 64108
Chicago Study Coordinator
Brittany Ray Tel. 773-702-9865 Fax: 773-753-8301 e-mail: bray10@medicine.bsd.uchicago.edu
Mailing address 5841 S Maryland Ave Chicago, IL 60637 Rm: W-515A
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