The Carousel Pediatric Hospice Team is an interdisciplinary team that provides outpatient hospice and home health services for pediatric patients in the Kansas City metro area. It is a part of Kansas City Hospice & Palliative Care. A wide range of diagnoses are present, including congenital anomalies with a terminal diagnoses, pediatric cancers, and sequelae from severe life-threatening traumatic injuries. The fellow will work closely with an interdisciplinary team of social workers, chaplains, music therapists, pharmacists, dietitians, child-teen specialists and others. During the carousel portion of the block, the fellow gains in-depth exposure to acute pain and symptom management of the pediatric patient and education and counseling for pediatric patients and families dealing with end of life issues.
The KU Kids Healing Place at KU Medical Center works with infants, children and adolescents with chronic and life-limiting diagnoses to provide palliative care from the time of diagnosis forward: to cure, to transition to adult care or to end-of-life care. KUKHP services focus on the child and family in the hospital and in the community, partnering with health care providers, school professionals, child care providers, clergy, coaches, peers and others to ensure that the young person is afforded developmentally appropriate experiences, despite the serious illness.
In addition, the fellow will have the opportunity to see children who are suffering the serious illness or loss of an adult loved one in the hospital, either with members of the KUKHP team or the Behavioral Pediatrics team.
During the pediatric rotation, the fellow will attend the Kansas City Hospice & Palliative Care Carousel Pediatric Hospice Team Meeting. Twice a month, the IDT team members will review the care plans and challenges for all patients on the service. The medical director for the pediatrics team will work with the fellow to provide input from a medical perspective.
During this rotation and during home visit months the fellow will make supervised home visits with another physician or member of the IDT team. Given the years of cumulative experience with pediatric hospice, the IDT members will be able to teach the fellow about the unique aspects of providing pediatric palliative care. While working with the pediatric palliative care team at KU, the fellow will see inpatient palliative care consults with Dr. Emily Riegel and Dr. Kathy Davis, and potentially inpatient behavioral pediatrics consultants. The fellow may also have opportunity at KU to see palliative patients in the outpatient setting, in the NICU survivors clinic as well as the Heme/Onc clinics. The fellow will attend the Peds Pall care case conference and will have opportunity for reading on the core palliative principles in the pediatric population.