The Frontiers and Pioneers Research Participant Registries include patients who have given permission to be contacted for future research studies. Frontiers patients have all been seen at KU Hospital, whereas Pioneers patients are those in the community who may or may not have been seen at KU Hospital. Qualified researchers with IRB-approved protocols can use these recruitment tools to obtain contact information for individuals who match the criteria for their studies.
Requesting Patient Contact Information:
Requests for contact information are made to the Recruitment Registry Review Committee (RRRC), a multi-disciplinary committee with representation from the University of Kansas Medical Center, KU Hospital, and the University of Kansas Physicians, Inc. The RRRC screens for overutilization of population groups and individuals. Requests for identification of vulnerable populations are given special consideration.
To obtain patient contact information, complete the application to the Recruitment Registry Review Committee (RRRC).
Documents required upon submission to the RRRC include:
Once approved, you will receive an approval notification and contact information will be sent separately in a password protected file through Secure File Transfer. The file will be available for 30 days. It is recommended that you remind patients that they signed an authorization from in one of the outpatient clinics giving permission to be contacted in the future about research and that is why they are now being called.
An updated database search can be conducted every 3 months, if requested. Please contact firstname.lastname@example.org for more information.
Please note that the Frontiers Research Participant Registry is available to KUMC faculty or those with a KUMC co-investigator.
How to search HERON for Frontiers participants
Research Recruitment Video:
Contact the Clinical Informatics Coordinator via the feedback form or call x8-7688