Medical Informatics
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COVID Data Resources
May 8, 2020 COVID i2b2 & Data Informational Session
Slides
COVID-19+ Cohort at KUMC
Cohort Information
- Data refreshed weekly
- Cohort includes all patients seen at TUKHS since 1/1/2020 who have been tested for COVID-19 or who have had a diagnosis code for illnesses such as COVID, pneumonia, influenza, bronchitis or fever.
Data Request Process
- Obtain IRB Approval or Quality Improvement Letter of Determination
- Build HERON Query
- HERON team will limit cohort to COVID positive or tested patients
- Log HERON Data Use or Recruitment Request
- Request form available at https://heron.kumc.edu (accessible at KUMC or via the KUMC VPN)
- Please specify if the query should be limited to COVID + or all patients tested for COVID
- HERON Team & Data Request Oversight Committee will Review Request
- All individuals listed on the request must sign the data use agreement on the HERON homepage
- Data Provided in REDCap
COVID-19+ Cohort within The Greater Plains Collaborative (GPC)
The Greater Plains Collaborative (GPC) is a network of 12 leading medical centers in 9 states committed to a shared vision of improving healthcare delivery through ongoing learning, adoption of evidence - based practices, and active research dissemination.
- Prototype query locally against i2b2 or PCORnet CDM
- If planning to supersize request to the GPC, pulling data from the PCORnet CDM will be easiest to replicate across sites
- Log GPC Feasibility or Data Request
- Request form found on www.gpcnetwork.org
- GPC Data Request Oversight Committee will review request
- Data will be provided in REDCap from each participating site
** Funding is required to request line-item GPC data. Feasibility counts are provided for free to support grant applications (as long as no custom work is needed).
National and International Data Efforts:
- 4CE Consortium is an international consortium for electronic health record (EHR) data-driven studies of the COVID-19 pandemic, led by the i2b2 international academics users group
- The goal is to inform doctors, epidemiologists and the public about COVID-19 patients with data acquired through the health care process.
- First preprint published from findings on EHR data from 96 hospitals in the US, France, Italy, Germany, and Singapore
- ACT Network
- Funded by NCATS to support cohort discovery for multicenter trials
- Feasibility counts run on over 125 million patient records from 44 sites in the CTSA network
- Queries return counts from each site
- 9 sites (BIDMC, Partners, UPitts, UCSD, UTSW, UCLA, USC, KUMC, UAB) have participated in a test network for COVID-19 patients
- Request access to production ACT on https://heron.kumc.edu
- Funded by NCATS to support cohort discovery for multicenter trials
- PCORnet COVID-19+ Network
- PCORnet is a large, highly representative, national patient-centered clinical research network.
- 20 Patient-Powered Research Network (PPRN), 13 Clinical Data Research Network (CDRN), 2 Health Plan Research Network (HPRD), consists of 329 safety net facilities and 348 health systems
- 11 CDRNs of 28 sites have participated in the COVID-19+ network
Last modified:
Jun 19, 2020