Access to potential study participants is essential for any study involving human participants. We have identified some potential KUMC sources for study participants, offered guidance on recruitment, and posted related forms below.
Frontiers: The Heartland Institute for Clinical and Translational Research
The mission of Frontiers is to be "an academic home for clinical and translational research, providing support to scientists and involving the community, so that discoveries and research findings will be brought more rapidly to the point of care, thus improving the health of all in the region." Frontiers provides Researcher Resources through all phases of a study. In the area of recruitment, Frontiers can assist you in in both identifying the potential study participant pool (necessary for any grant proposal) and for accessing people who may be willing to participate in your study.
- Pioneers Participant Website Registry (available to all Frontiers investigators) - Advertise your study, find volunteers who have provided some personal health background information to assist in narrowing study cohorts. Find information on listing your study and accessing participants on the Pioneers Researcher FAQ page.
- Frontier Participant Registry (currently limited to KUMC investigators) - Access a registry of KUMC patients who have agreed to be contacted for research studies.Use HERON (Healthcare Enterprise Repository for Ontological Narration) to query de-identified KUMC medical records for patient data. Combined with the Frontiers Registry, HERON can connect investigators with volunteers (after meeting regulatory requirements).
Guidance on Recruitment
- FDA Information Sheet on Recruiting Study Subjects
- Guidelines for Recruitment Materials and Advertisements Jan 2018
- SOP 8.0: Selection and Recruitment of Subjects