Huntington's Disease and the  Internet

To get to the Internet you will need:

• a computer, either pc or Macintosh
• an Internet browser program (e.g. Netscape or Microsoft Explorer)
• Internet access
• T1 line, Universities, school, libraries (free)
• Modem and an Internet Service Provider (ISP) ($)
• Cable modem and ISP through your cable company ($)
• Some ISPs like Compuserve and AOL use their own proprietary software for the browser.

Searching can be done as a word or phrase or using Boolean logical connectors. For example you can search for <huntington> and find out a lot about Huntington beach, Huntington high school, the Huntington family tree Ö You will find many of the same links if you use <huntington's>. If you use <huntington AND disease> or <huntington disease> you will find more sites that are specific for HD.

Sites are listed at the server for the search engines. To have a site listed you must first post (or ask) the site to list the URL (see below). The site <submitit.com> is a collection of submissions for a large number of search engines. Usually the author submits the sites to search engines.

Search Engines:

• Excite (excite.com)
• Lycos (lycos.com)

• Yahoo (yahoo.com)

Who is Dot and what does she have to do with this?
The address, for US sites is always name followed by a period (known as a dot) followed by a suffix. The suffixes are com for commercial, mil for military, gov for government, org for organization, and net for network. Sites outside of the United States are name followed by a dot and a two letter country code (e.g. ca for Canada).

 List Server and Chat Room Etiquette
List servers are great places to share ideas, but there are several important points to remember.

• A list server is an ongoing conversation. By the time that you join, the members have already talked about many topics. They may not always want to revisit an area that they just discussed, especially if the discussion was bitter and prolonged.
• Everyone has an opinion, and some have more than one opinion on any given topic. Everyone's opinion should be treated equally and with respect.
• Free advice is worth what you pay for it.
• Do not tell things about yourself and those around you unless you want to the whole world to know. Including the people that you may have been hiding things from for a long time.
• USING ALL CAPITALS IS THE EQUIVALENT OF SHOUTING!!!
• if you can not use the shift key, type everything as lower case, like e. b. white.
• Everyone has a story with a bad outcome to share, most people do not share stories with good outcomes. Expect that when you ask about everyone's experience with a medication that you will hear a lot of bad reports and few good reports.

• Hunt-dis list server (listser@maulstrom.stjohns.edu)
• Yahoo

List server instructions:
<LISTSERV@MAELSTROM.STJOHNS.EDU>
Subject: File: "LISTSERV REFCARD"
LISTSERV(R) System Reference Library, release 1.8c --------------------------------------------------
Copyright L-Soft international, 1986-1996

Last update: 13 Aug 1996

Commands are listed in alphabetical order, with the minimum acceptable abbreviation in capital letters. Angle brackets are used to indicate optional parameters. All commands which return a file accept an optional 'F=fformat' keyword (without the quotes) that lets you select the format in which you want the file sent; the default format is normally appropriate in all cases. Some esoteric, historical or seldom-used commands and options have been omitted.

List subscription commands (from most to least important)
SUBscribe listname <full_name> Subscribe to a list, or change your name if already subscribed
ANONYMOUS -> Subscribe anonymously

SIGNOFF Remove yourself:
listname - From the specified list
* - From all lists on that server
* (NETWIDE - From all lists in the network

SET listname options Alter your subscription options:
ACK/NOACK/MSGack -> Acknowledgements for postings
CONCEAL/NOCONCEAL -> Hide yourself from REVIEW
Mail/NOMail -> Toggle receipt of mail
MIME/NOMIME -> Prefer/avoid MIME format (especially MIME digests)
DIGests/INDex/NODIGests/NOINDex -> Ask for digests or message indexes rather than getting messages as they are posted
REPro/NOREPro -> Copy of your own postings?

TOPICS: ALL -> Select topics you are
<+/->topicname subscribed to (add/remove one or replace entire list)

Options for mail headers of incoming postings (choose one):
FULLhdr or FULL822 -> "Full" (normal) mail headers
IETFhdr -> Internet-style headers
SHORThdr or SHORT822 -> Short headers
DUALhdr -> Dual headers, useful with PC or Mac mail programs
SUBJecthdr -> Normal header with list name in subject line

CONFIRM listname1 <listname2 <...>> Confirm your subscription (when LISTSERV requests it)

Other list-related commands
---------------------------
GETPOST listname ref1 <ref2 <...>> Order individual messages from list archives

INDex listname Sends a directory of available archive files for the list, if postings are archived
Lists <option> Send a list of lists as follow:
(no option) -> Local lists only, one line per list
Detailed -> Local lists, full information returned in a file
Global /xyz -> All known lists whose name or title contains 'xyz'
SUMmary <host> -> Membership summary for all lists on specified host
SUMmary ALL -> For all hosts (long output, send request via mail!)
SUMmary TOTAL -> Just the total for all hosts
Query listname Query your subscription options for a particular list (use the SET command to change them)
* -> Query all lists you are subscribed to on that server
REGister full_name Tell your name to LISTSERV, so that you don't have to specify it on subsequent SUBSCRIBE's
OFF Make LISTSERV forget your name
REView listname <(options> Get information about a list
BY sort_field -> Sort list in a certain order:
Country by country of origin
Name by name (last, then first)
NODEid by hostname/nodeid
Userid by userid
BY (field1 field2) -> You can specify more than one sort field if enclosed in parentheses: BY (NODE NAME)
Countries -> Synonym of BY COUNTRY
LOCal -> Don't forward request to peers
Msg -> Send reply via interactive messages (BITNET users only)
NOHeader -> Don't send list header
Short -> Don't list subscribers
SCAN listname text Scan a list's membership for a name or address
SEArch listname word1 <word2 <...>> Search list archives or: word1 <word2 <...>> IN listname
FROM date1 -> From this date
TODAY -> From today
TODAY-7 -> In the last 7 days
TO date2 -> To this date
WHERE
SUBJECT CONTAINS xxxx -> Only this subject
AND/OR
SENDER CONTAINS xxxx -> Only this author
Complex boolean operations are supported, see database guide
STats listname <(options> Get statistics about a list (VM)
LOCal -> Don't forward to peers

Informational commands
----------------------
Help Obtain a list of commands
INFO <topic> Order a LISTSERV manual, or get
<listname> a list of available ones (if no topic was specified); or get information about a list
GET fn ft <filelist> <(options> Order the specified file or package
GIVE fn ft <filelist> <TO> user Sends a file to someone else
INDex <filelist> Same as GET xxxx FILELIST
(default is LISTSERV FILELIST)
SENDme Same as GET