Support Groups and International HD Organizations


The local, national and international Huntington's disease support groups have been influential in providing support for patients and families with Huntington's disease; and in providing educational materials to patients and their families and to health care workers; initiating and supporting research on Huntington's disease. Without their knowledge and support this home page would not be possible, since many, if not most, of the ideas originated from them. Please contact and join one of them. They can help to support you in a time of need as no one else can.

The HDSA and the HSC have many well written guides and videotapes that can be purchased for very nominals fees (their cost of production). Please write or call them for a publications list.
 
 

Support Groups

United StatesHuntington's Disease Society of America (HDSA)
158 West 29th Street, Seventh Floor
New York, NY, 10001-5300
Tel. (212) 242-1968
fax (212) 239-3430
Visit their web pageHDSA

International

Australian Huntington's Disease Association (NSW) Inc.
21 Chatham Road, West Ryde NSW 2114
PO Box 178, West Ryde NSW 1685
E-mail: hdassoc@ahdansw.bu.aust.com
 

Huntington's Disease Association WA (Inc.)
439 Vincent Street West
Leederville WA 6007, Australia
Tel. (61 8) 9388 3200)
Fax (61 8) 9388 3344
Email: huntingt@cygnus.uwa.edu.au

Australian Huntington's disease Associtation (Vic.) Inc. home page

Oesterreichische Huntington Hilfe
Hasnerstrasse 88/23, Vienna 1160,Austria
Tel. (43) 1 - 4929 153

Huntington Liga
Krijkelberg 1 B 3360 Leuven, Belgium
Tel (32) 16 - 452 759
fax (32) 16 - 463 079

Ligue Huntington Francophone Belge
Rue de Brouckere 19
6150 Anderlues, Belgium
Tel. (32) 87 - 675 408

 Dr. Francisco Salzano
Departmento de Genetica
Instituto de Biociencias, UFRGS
Caixa {psta; 15053
91501-970 Porto Aelegere RS, Brazil
Tel. (55) 51 - 316 6747
fax. (55) 51 - 319 3011
Email:salzano@ifl.if.ufrgs.br

 Association Brasil Huntington
Rua Das Camelias , 38
Jardim Imperial
Atibai - SP
Brazil
ZIP CODE 12940-000
Phone : ++55 11 8963892
Email: hdbr@latinmail.com

Huntington Society of Canada (HSC)
Huntington Society of Canada
151 Federick Street
Suite 400
Kitchener, ON, Canada
N2H 2M2
tel: (519) 749-7063
Fax (519) 749-8965Email: info@hsc-ca.org

Huntington Society of Quebec
505 de Miasonneuve West, Suite 300
Montreal, Quebec, Canada H3A 3C2
Tel. (514) 282-4272
fax (514) 282-4242

Spolecnost Pro Pomoc Pri Hintingtonove Chorobe
Dolní Brezany 153
25241 Dolní Brezany, Czech republic
Tel. (42) 2 - 2490 4261/2490 4269
fax. (42) 2 - 294 905

Landsforeningen mod Huntingtons Chorea
Havnøvej 38
DK-9560 Hadsund
Denmark
Tel: +45 9857 5323
Telefax: +45 9857 3496
 

Dr. Nelson Penafiel-Revelo
Toledo 1233 Y Luis Cordero
Quito, Ecuador
Tel. (593) 2 - 526 230
fax. (593) 2 - 503 575

 Mrs. Monica Naranjo
Bristol Laboratories
Diguja 198 Y Voz Andes
Quito, Ecuador

 Huntington Association of Finland
Meriraumantie 21 AS6
SF 26200 Rauma
Finland
Tel. (358) 2 - 821 1632
fax. (358) 2 - 822 404

 Association Huntington France
42,44 Rue du Chateau Des Rentiers
75013 Paris, France
Tel. (33) 1 - 6986 9047
fax. (33) 1 - 6986 6050

Deutsche Huntington-Hilfe e.V.
Geschaefts- und Beratungsstelle
Boersenstr. 10
D-47051 Duisburg
Tel.: *49 (0)203/22915
Fax: *49 (0)203/22925
email: dhh@dhh-ev.de
www.dhh-ev.de
www.selbsthilfenetz.de

 Dr. Bela Csala
Budal Nagy A.U. 14
7624 PACS, Hungary
Tel. (36) 72 - 314 344
fax. (36) 72 - 326 715

 Ms. Mano Singh
K 18/7 DLF Qutub Enclave Phase II
35-66-77 Gurgaon Haryana, India
Tel. c/o (91) 646 - 4544
fax. (91) 644 - 4221

 Huntington's Disease Association of Ireland
Carmichael House, N. Brunswick St.
Dublin 7, Ireland
Tel (44) 1 - 872 1303
fax (44) 1 - 873 5737
Email:hdai@indigo.ie

 Amita Huntington Israel
3 Lubezky Street
Gedera 70700,Israel
Tel. (972) 8 - 859 8573
fax. (972) 2 - 670 8387
Email:farkash@netvision.net.il

 Associazione Italiana Corea Di Huntington
Via L. Ariosto 19
20145 Milano, Italy
Tel. (39) 2 - 4801 5529
fax. (39) 2 - 239 4448

Japan Huntington Disease Network
c/o Akutsu
5-29-6, Minami-senju, Arakawa-ku,
Tokyo 116-0003, JAPAN
http://homepage1.nifty.com/JHDN/index.html
E-mail: jhdn@mbd.nifty.com

 Prof. Valius Pauza, MD, Ph.D.
Chair, Neurological Department and Clinic
Kaunas Medical Academy
Vmickevicuaus 9, Kaunas 3000, Lithuania
Tel. (370) 7 - 792 627/ 733 849
fax. (370) 7 - 220 733

 Prof. Alfred Cuschiari
Dept. of Anatomy
University of Malta
Msida MSD 06, Malta
Tel. (356) 336 451
fax. (356) 336 450/ 319 527

 Assocacion Mexicana de la Enfermedad de Huntington A.C.
San Carlos #51
San Angel Inn, Mexico D.F.CP 0001060
Tel. (52) 5 - 550 76 26

 Vereniging Van Huntington
Post Box 30470
2500 Gl Den Haag,The Netherlands
Tel. (31) 70 - 314 8888
fax. (31) 70 - 314 8880
Email:iha-huntington@tip.nl

 Huntington's Disease Association of New Zealand
Post Box 78
Cust, Nort Canterbury,New Zealand
Tel. (64) 3 - 3125 612
fax. (64) 4 - 232 5365

 Huntington's Disease Association of Northern Ireland
Dept.of Medical Genetics
Belfast BT9 7AB, Northern Ireland
Tel. (353) 232 - 653826

 Landsforeningen for Huntington's Sykdom
Post Box 103
N 1415 Oppegard, Norway
Tel. (66) 992 477
fax. (66) 992 477
Email:astrid.jenssen@vist.v10.no

 Dr. Euan Scrimgeour
Dept. of Medicine, College of Medicine
Sultan Qaboos University
Post Box 35
Al-Khod 123, Sultanate of Oman
Tel. (968) 513 333
fax. (968) 513 419

 Huntington Disease Care and Cure Society of Pakistan
2 Sawati gate
Peshawar Cantt
Pakinstan
Tel. (92) 521 - 275 471
fax. (92) 521 - 273 900

 Prof. Carlo Todisco
Dr. Hassler 5738 C. Ala Paraguayas
Asuncion, Paraguay

 Prof. Jacek Zaremba>BR> Insitute Psychiatry/Neurology
1/0 Sobieskiego Str.
02-957 Warsaw, Poland
Tel. (48) 22 - 642 6611 ext. 248
fax. (48) 22 - 642 5375

 Mrs. Ursula-Anna Kleinbrink
Rue Dr. Afonso Cossta 30
P 8500 Alvor-Portimao, Portugal
Tel. (351) 82 - 459 337
fax. (351) 82 - 459 337

 Huntington Association of Russia
Institute of Neurology, AC Science
Volokolamskoye Shosse 80
123367 Moscow, Russia
Tel. (7) 95 - 490 2103/ 490 2039/ 490 2506
fax. (7) 95 - 490-2210

 Scottish Huntington's Disease Association
Thistle House, 61 Main Road
Ederslie, Jonstone, PA5 9BA, Scotland
Tel: (44) 1505 3222 45
Fax: (44) 1505 3829 80
Email:ronald.livingstone@virgin.net

 Spolecnost Pre Pomoc Pri Huntingtonovej Chorobe V Slovenskej Republike
Oddelinie Lekarskej Genetiky
97517 Banska Bystrica, Slovakia
Tel. (42) 88 - 713 380
fax. (42) 88 - 320 65

 Huntington's Society of South Africa
Post Box 44501
Claremonte, Cape Town,South Africa
Tel (27) 21 - 938 4911
fax. (27) 21 - 761 4438
Email: jschron@iafrica.com

 Associacon de Corea de Huntington Española
Fund Jimenez Diaz. Serv/ Neurologia
Avda Reyes Catolicos 2
28040 Madrid 28040,Spain
Tel. (34) 1 - 544 9008
fax. (34) 1 - 549 7381

Associacion Catalna de Malalts de Huntingon (ACMAH)
Av. Pere Verges s/n Despatx 7.1
(08020 Barcelona) Espana
Tel. and fax: 93.314.56.57
Email:  acmah.b@suport.org

 Huntington Foreningen I Sverige
C/o NHR Post Box 3284
Kungsgatan 32, 10365 Stockholm, Sweden
Tel. (46) 8 - 140 320
fax. (46) 8 - 241 315/677 7010

 Schweizerische Huntington Vereinigung
Heidy Moser-Welti, Presdient
Bahnweg 4
CH 8156 Oberhasli, ,Switzerland
Tel. (41) 1 885 1941
fax. (41) 1 885 1844
Email:shv@swissonline.ch

 UK Huntington's Disease Association
108 Battersea High St.
London SW11 3HP,United Kingdom
Tel.(44) 171 - 223 7000
fax. (44) 171 - 223 9489
 
 

Organizations

Hereditary Disease Foundation<
1427 7th Street, #2
Santa Monica, CA 90401
Tel. (213) 458 - 4183

International Huntington Association (IHA)
Gerrit Dommerholt
Development Officer
Callunahof 8
7217 St. Harfsen
The Netherlands
Tel. (31) 573 - 431 595
fax (31)-573 - 431719
Email:   iha@huntington-assoc.com


On-Line Discussion Group

An on-line disussion group is being started by Storm King, a graduate student in psychology at St. John's University. The host machine is listserv@sjuvm.stjohns.edu

 To subscribe send a message to listserv@stjohns.edu and include the following text in the body of your message:

 SUBSCRIBE HUNT-DIS yourfirstname your lastname


Return to the introduction page of Caring for People with Huntington's Disease
KUMC Pulse This home page is supported by the Department of Neurology at the Kansas University Medical Center. 
Suggestions and comments are welcome. If I have missed your support group or the contact has changed, if I have made an error in your listing or if you have an Email address or home page to add, let me know by mailing the information to me at: Dubinsky@kuhub.cc.ukans.edu This page was last updated on May 28, 2001.