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Xeroderma Pigmentosum

Xeroderma Pigmentosum Society, Inc.
437 Snydertown Road, Craryville, N.Y. 12521 USA
Telephone or Fax: 1 (518) 851- 2612
Toll free (within US):   1 (877) 977-2873 or 1 (877) XPS CURE
web site: (also in Spanish, French, German, Italian, Portuguese, or Norwegian)
XP Support Group, United Kingdom

Also See:

  • Camp Sundown, year-round "night camp" for sun sensitive children and their families, USA
  • Owl Patrol Night time Camp, United Kingdom 

  • To locate a genetic counselor or clinical geneticist in your area:

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    Genetics Education Center
    University of Kansas Medical Center © 1995-2012
    Debra Collins, M.S. CGC, Genetic Counselor,


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