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von Hippel-Lindau syndrome

VHL Family Alliance
171 Clinton Road
Brookline, Massachusetts 02445
Phone: 617.277.5667, 800.767.4VHL (answered in English, Spanish, and French)
Fax:  +1.858.712.8712
E-mail: [Spanish] and [French]
Web site:,  (lists support groups throughout Europe)
Languages: en espa˝ol, en franšais, auf deutsch, dansk, Belgie, in het Nederlands, Japanese
Handbook (2005) is being translated into 12 language, including Chinese.

Also See:

Genetic counselors and clinical geneticists:

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Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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