VATER / VACTRL Association

VATER / VACTRL

V -- vertebral anomalies / dysgenesis, vascular anomalies
A -- anal atresia
C -- Cardiac anomalies
T -- tracheo-esophageal (T-E) fistula
E -- esophageal atresia
R -- renal anomalies, radial dysplasia
L -- Limb anomalies
S - Single umbilical artery

VACTRLS Association Family Network (VAFN): 215 Gould St., Plymouth PA 18651; E-mail: mother2zoe@aol.com; Web site: http://groups.msn.com/vaterssyndromevafn/_homepage.msnw?pgmarket=en-us

VATER Connection: 1722 Yucca Lane, Emporia, KS 66801
Phone: 316.342.6954
E-mail: webmaster@vaterconnection.org
Web site: www.vaterconnection.org/

TEF/VATER/VACTRL National Support Network: 15301 Grey Fox Road, Upper Marlboro MD 20772; Phone: 301.952.6837 - Fax: 301.952.9152; E-mail: tefvater@ix.netcom.com; Web site: www.tefvater.org

Tracheo-Oesophageal Fistula Support Group (TOFS): St. George's Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN, United Kingdom
Telephone & Fax: +44 (0) 115 9400694
E-mail: info@tofs.org.uk; Web site: www.tofs.org.uk/ includes links to other organizations

EA/TEF (Esophageal Atresia and Tracheoesophageal Fistula) Family Support Connection: 111 West Jackson Boulevard, Suite 1145, Chicago, IL 60604-3502; Phone: 312.987.9085 - Fax: 312.987.9086
E-mail address: eatef2@aol.com

Association française de l'atrésie de l'oesophage (AFAO), French support group for esophageal atresia

56 rue Cécile 94700 Maisons ALfort

E-mail: afao@afao.asso.fr

Website: www.afao.asso.fr

Also See:

National organizations, information on genetic conditions or birth defects
VATER information, Children's Hospital Medical Center, Cincinnati, Ohio
Kidney Conditions resources
VATER Association, Online Mendelian Inheritance in Man (OMIM 192350)
VACTERL Association with hydrocephalus, Online Mendelian Inheritance in Man (OMIM #276950)
Non-Cardiac Defects in Children with Congenital Heart Disease
Limb anomalies resouces
Hand surgery site, St James's University Hospital
GI Links, Digestive Health Network

PAGER - Pediatric Adolescent Gastroesophageal Reflux Association, Inc.
P.O. Box 1153, Germantown, MD 20875-1153
Phone: 301.601.9541
Pull Through Network (imperforate anus, cloaca, VATER association, urinary incontinence, Hirschsprung's Disease, spinal and renal anomalies)
4 Woody Lane, Westport, CT 06880
Phone: 203.221.7530
Web site: www.pullthrough.org
United Ostomy Association, Inc. (UOA)
Parents of Ostomy Children POC)
38 Coleport Landing, Alameda, CA 94502

To locate a genetic counselor or clinical geneticist in your area:

Revised January 23, 2009

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