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V -- vertebral anomalies / dysgenesis, vascular anomalies
A -- anal atresia
C -- Cardiac anomalies
T -- tracheo-esophageal (T-E) fistula
E -- esophageal atresia
R -- renal anomalies, radial dysplasia
L -- Limb anomalies
S - Single umbilical artery

VACTRLS Association Family Network (VAFN)
215 Gould St., Plymouth PA 18651
Web site:
VATER Connection
1722 Yucca Lane, Emporia, KS 66801
Phone: 316.342.6954
Web site:
TEF/VATER/VACTRL National Support Network
15301 Grey Fox Road, Upper Marlboro MD 20772
Phone: 301.952.6837 - Fax: 301.952.9152
Web site:
Tracheo-Oesophageal Fistula Support Group (TOFS)
St. George's Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN, United Kingdom
Telephone & Fax: +44 (0) 115 9400694
Web site:  includes links to other organizations
EA/TEF (Esophageal Atresia and Tracheoesophageal Fistula) Family Support Connection
111 West Jackson Boulevard, Suite 1145, Chicago, IL 60604-3502
Phone: 312.987.9085 - Fax: 312.987.9086
E-mail address:
Association française de l'atrésie de l'oesophage (AFAO), French support group for esophageal atresia
56 rue Cécile 94700 Maisons ALfort

Also See:

PAGER - Pediatric Adolescent Gastroesophageal Reflux Association, Inc.
P.O. Box 1153, Germantown, MD 20875-1153
Phone: 301.601.9541

Pull Through Network (imperforate anus, cloaca, VATER association, urinary incontinence, Hirschsprung's Disease, spinal and renal anomalies)
4 Woody Lane, Westport, CT 06880
Phone: 203.221.7530
Web site:

United Ostomy Association, Inc. (UOA)
Parents of Ostomy Children POC)
38 Coleport Landing, Alameda, CA 94502

To locate a genetic counselor or clinical geneticist in your area:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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