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VATER / VACTRL

V -- vertebral anomalies / dysgenesis, vascular anomalies
A -- anal atresia
C -- Cardiac anomalies
T -- tracheo-esophageal (T-E) fistula
E -- esophageal atresia
R -- renal anomalies, radial dysplasia
L -- Limb anomalies
S - Single umbilical artery

VACTRLS Association Family Network (VAFN)
215 Gould St., Plymouth PA 18651
E-mail:  mother2zoe@aol.com
Web site: http://groups.msn.com/vaterssyndromevafn/_homepage.msnw?pgmarket=en-us
VATER Connection
1722 Yucca Lane, Emporia, KS 66801
Phone: 316.342.6954
E-mail: webmaster@vaterconnection.org
Web site: www.vaterconnection.org/
TEF/VATER/VACTRL National Support Network
15301 Grey Fox Road, Upper Marlboro MD 20772
Phone: 301.952.6837 - Fax: 301.952.9152
E-mail: tefvater@ix.netcom.com
Web site: www.tefvater.org
Tracheo-Oesophageal Fistula Support Group (TOFS)
St. George's Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN, United Kingdom
Telephone & Fax: +44 (0) 115 9400694
E-mail: info@tofs.org.uk
Web site: www.tofs.org.uk/  includes links to other organizations
EA/TEF (Esophageal Atresia and Tracheoesophageal Fistula) Family Support Connection
111 West Jackson Boulevard, Suite 1145, Chicago, IL 60604-3502
Phone: 312.987.9085 - Fax: 312.987.9086
E-mail address: eatef2@aol.com
Association française de l'atrésie de l'oesophage (AFAO), French support group for esophageal atresia
56 rue Cécile 94700 Maisons ALfort
E-mail: afao@afao.asso.fr
Website: www.afao.asso.fr

Also See:

PAGER - Pediatric Adolescent Gastroesophageal Reflux Association, Inc.
P.O. Box 1153, Germantown, MD 20875-1153
Phone: 301.601.9541

Pull Through Network (imperforate anus, cloaca, VATER association, urinary incontinence, Hirschsprung's Disease, spinal and renal anomalies)
4 Woody Lane, Westport, CT 06880
Phone: 203.221.7530
Web site: www.pullthrough.org

United Ostomy Association, Inc. (UOA)
Parents of Ostomy Children POC)
38 Coleport Landing, Alameda, CA 94502

To locate a genetic counselor or clinical geneticist in your area:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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