Unknown and Rare Conditions

SWAN (Syndromes without a Name), United Kingdom

Undiagnosed Conditions, USA

 

Undiagnosed Children Fact Sheet for Parents (.doc), Special-abilities.net, UK

Also See:

• National organizations information on genetic conditions or birth defects
• Information for Siblings and Family Members
• Genetic Condions / Rare Conditions web sites, lists of genetic conditions and rare conditions, national, international and other resources
• Contact a Family, United Kingdom

To locate a genetic counselor or clinical geneticist in your area:

• Professional Genetics Societies
• Genetic clinics, centers, departments

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu

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