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Turner Syndrome (45,X and variants )


Turner Syndrome Society of the United States
14450 T.C. Jester, Suite 260
Houston, TX  77014 USA
Phone:  800.365.9944 or 832.249.9988
Fax:  832.249.9987
Website:  www.turner-syndrome-us.org

Turner Syndrome Camp, Camp for 12-18 year-olds with Turner Syndrome, Ft. Collins, Colorado, July 2004, sponsored by Children’s Hospital, Los Angeles, CA (323) 669-2490, bdaley@chla.usc.edu

Canada
 
Turner Syndrome Society of Canada
7777 Keele St, Fl 2
Concord ON, CN L4K 1Y7
Phone: (800) 465-6744 or (416) 660-7766
Fax: (416) 660-7450
or
Sandi Hofbauer, Exec. Dir.
814 Glencairn Ave
Toronto, Ont. M6B 2A3 Canada
Tel: 800 465-6744 (Canada and USA) or 416-781-2086
Fax: 416-781-7245
 
Australia

Turner Syndrome Association of Australia Limited
P.O. Box 112
Frenchs Forest, N.S.W., Australia 2086
E-mail: turnersyn@syd.net.au 

Victorian Turner's Syndrome Association Inc.
31 Price Street
Essenden, Victoria, Australia 3040

Austria

ÖTSI Österreichische Turner Syndrom Initiative
Mag. Susanne & Peter Siebert
Koppstrasse 46/6
A-1160 Wien, Austria
Tel.: 0043 1 495 94 10
E-mail:  psiebert@members
Web site: www.oetsi.at 

Belgium

Hoogkamerstaat 159
Temse, Belgium B-9140

Turnerkontakt V. Z. W.
Leona Willems
Nederkouter 45
9260 Wichelen , Belgium
Tel & Fax :052/42.48.29
e-mail : turner@tornado.be 

Brazil

Grupo Crescendo-Paraná
Renato Antonio Fontana
Av.Florida 4495
87501-220
Umuarama, Parana, Brazil
E-mail: Chrysty@fenixnet.com.br 

Czechoslovakia

Czechoslovok Turner Syndrome Group
Kladenska 1
Praha 6, Czechoslovakia CS160 00

Denmark

Chairman: Gitte Sřrensen,
DK-2650 Hvidovre,
Gillesager 234.
Phone +45 70201140

Landsforeningen at Turner Kontakt Grupper
Byagervej 27B
Tureby, Denmark DK-4682

Danish Turner Center
Cytogenetic Laboratory
Skovagervej 2
Risskov, Denmark DK-8240
Tel: +45 86 17 7777, ext. 3609
Fax: +45 86 17 5977
Web site:  www.aaa.dk/turner/engelsk/INDEX.htm  

England

The Turner Syndrome Society
2 Mayfield Avenue
London W4 1PW  England

Tel: 44 (0)181-994 7625
or 44 (0)181-995 0257
Fax: 44 (0)181-995 9075
Web site www.exnet.com/staff/sys4/ts.html    or www.tss.org.uk/ 

Human Growth Foundation
378 Birmingham Road
Walsall, England WS5 3NX

Finland

Journaankyla
Finland SF-07680

France

Association des groupes Amitié Turner
34, rue de la Tour D'Auvergne
Paris, France F-75009
Web site: http://orphanet.infobiogen.fr/associations/AGAT/AGAT.html

Germany

Deutsche Ullrich-Turner-Syndrom Vereinigung e.V
c/o Melanie Becker-Steif
Am Talstücksbach 7
D-53809 Ruppichteroth-Fusshollen
Tel. & Fax.: 02247 / 75 97 50
Web site:  www.turner-syndrom.de 

Iceland

The Icelandic Turner Syndrome Association
c/o Soffía Fr. Rafnsdóttir
101 Reykjavík
Njalsgata 75  Iceland
Tel: (354) 562-3328
E-mail:sfr@simnet.is

Ireland

Irish Turner Contact Group
Cornerstone Kingston Crescent, Dundrum
Dublin 14, Ireland

Israel

Turner Syndrome Society of Israel
P.O.Box 28333
Jerusalem 91281  Israel

Italy

GAST
Via Filippo Nicolai, 49
Roma, Italy 00136

NETHERLANDS

Meestoof 8
4681 CB Nieuw-Vossemeer, The Netherlands

New Zealand

Turner Syndrome Association of New Zealand
PO Box 108-077
Symonds Street
Auckland, New Zealand
phone 0064 9 5256153
E-mail: jumbo@clear.net.nz

Norway

Center for Rare Disorders (includes Turner's Syndrome)
Rikshospitalet
Pilestredet 32
0027 Oslo
Tel: +47 22 86 84 59
Fax: +47 22 86 84 58
E-mail: ssss@rh.uio.no 


Scotland

Scottish Turner Syndrome Society
1/8 Irving Court, Hardgate
Clydebank Dunbartonshire, Scotland G81 6BA

South Africa

Turner Syndrome Contact Group of South Africa
PO Box 16111
Dowerglen 1610
Edenvale, South Africa
Tel: & Fax: +27 11 453-0024
Email: josie@pixie.co.za

Spain

APAC
Luz Arriero 2 Casa 2, Bajo A
Sevilla, Spain 41010

ADAC Asociación para deficiencias de Crecimiento y Desarrollo
[Association for Deficiencies that affect Growth and Development]
Manuel Villalobos 41
Sevilla 41008,  Spain
#Tf.: 34 68 346218
#Fax: 34 68 346202
E-mail: m.abascal.000@recol.es
Web site:  www.geocities.com/HotSprings/Villa/4521/index.html

Swedan

Pargasgatan 7
Kisa, Sweden S-16479

William Gibonsvej 8
Partille, Sweden S43376

Svenska Turner Foreningen
Korngatan 7
Katrineholm, Sweden S-64152

Switzerland

Selbsthilfegruppe Turner Syndrom Schweiz
PO Box 285, Kappelisackerstr. 101
Ittigen, Switzerland CH-3063
Short Stature Groups
 
Human Growth Foundation
7777 Leesburg Pike,
Falls Church, VA 22043
Phone: (800) 451-6434 or (703) 883-1773 Contact: Kimberly Frye
Fax: (703) 883-1776
 
Little People of America (LPA), Inc.
PO Box 9897
Washington, DC 20016
Phone: (800) 243-9273 or (301) 589-0730 Contact: Jean Elmendorf
Fax:(707)745-8957
 
Parents of Dwarfed Children
11524 Colt Terrace
Silver Spring, MD 20902
Phone: (301) 649-3275
 
Short Stature/ Dwarfism Information

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