- Turner
Syndrome Society of the United States
- 14450 T.C. Jester, Suite 260
- Houston, TX 77014 USA
- Phone: 800.365.9944 or 832.249.9988
- Fax: 832.249.9987
- Website: www.turner-syndrome-us.org
Turner
Syndrome Camp, Camp for 12-18 year-olds with Turner Syndrome,
Ft. Collins, Colorado, July 2004, sponsored by Children’s Hospital,
Los Angeles, CA (323) 669-2490, bdaley@chla.usc.edu
- Canada
-
- Turner Syndrome Society of Canada
- 7777 Keele St, Fl 2
- Concord ON, CN L4K 1Y7
- Phone: (800) 465-6744 or (416)
660-7766
- Fax: (416) 660-7450
- or
- Sandi Hofbauer, Exec. Dir.
814 Glencairn Ave
Toronto, Ont. M6B 2A3 Canada
Tel: 800 465-6744 (Canada and USA) or 416-781-2086
Fax: 416-781-7245
-
- Australia
Turner Syndrome Association of Australia Limited
P.O. Box 112
Frenchs Forest, N.S.W., Australia 2086
E-mail: turnersyn@syd.net.au
Victorian Turner's Syndrome Association Inc.
31 Price Street
Essenden, Victoria, Australia 3040
Austria
ÖTSI Österreichische Turner Syndrom Initiative
Mag. Susanne & Peter Siebert
Koppstrasse 46/6
A-1160 Wien, Austria
Tel.: 0043 1 495 94 10
E-mail: psiebert@members
- Web site: www.oetsi.at
Belgium
Hoogkamerstaat 159
Temse, Belgium B-9140
Turnerkontakt V. Z. W.
Leona Willems
Nederkouter 45
9260 Wichelen , Belgium
Tel & Fax :052/42.48.29
e-mail : turner@tornado.be
Brazil
Grupo Crescendo-Paraná
Renato Antonio Fontana
Av.Florida 4495
87501-220
Umuarama, Parana, Brazil
E-mail: Chrysty@fenixnet.com.br
Czechoslovakia
Czechoslovok Turner Syndrome Group
Kladenska 1
Praha 6, Czechoslovakia CS160 00
Denmark
Chairman: Gitte Sørensen,
DK-2650 Hvidovre,
Gillesager 234.
Phone +45 70201140
Landsforeningen at Turner Kontakt Grupper
Byagervej 27B
Tureby, Denmark DK-4682
Danish Turner Center
Cytogenetic Laboratory
Skovagervej 2
Risskov, Denmark DK-8240
Tel: +45 86 17 7777, ext. 3609
Fax: +45 86 17 5977
Web site: www.aaa.dk/turner/engelsk/INDEX.htm
England
The Turner Syndrome Society
2 Mayfield Avenue
London W4 1PW England
Tel: 44 (0)181-994 7625
or 44 (0)181-995 0257
Fax: 44 (0)181-995 9075
Web site www.exnet.com/staff/sys4/ts.html
or www.tss.org.uk/
Human Growth Foundation
378 Birmingham Road
Walsall, England WS5 3NX
Finland
Journaankyla
Finland SF-07680
France
Association des groupes Amitié Turner
34, rue de la Tour D'Auvergne
Paris, France F-75009
Web site: http://orphanet.infobiogen.fr/associations/AGAT/AGAT.html
Germany
Deutsche Ullrich-Turner-Syndrom Vereinigung e.V
c/o Melanie Becker-Steif
Am Talstücksbach 7
D-53809 Ruppichteroth-Fusshollen
Tel. & Fax.: 02247 / 75 97 50
Web site: www.turner-syndrom.de
Iceland
The Icelandic Turner Syndrome Association
c/o Soffía Fr. Rafnsdóttir
101 Reykjavík
Njalsgata 75 Iceland
Tel: (354) 562-3328
E-mail:sfr@simnet.is
Ireland
Irish Turner Contact Group
Cornerstone Kingston Crescent, Dundrum
Dublin 14, Ireland
Israel
Turner Syndrome Society of Israel
P.O.Box 28333
Jerusalem 91281 Israel
Italy
GAST
Via Filippo Nicolai, 49
Roma, Italy 00136
NETHERLANDS
Meestoof 8
4681 CB Nieuw-Vossemeer, The Netherlands
New Zealand
Turner Syndrome Association of New Zealand
PO Box 108-077
Symonds Street
Auckland, New Zealand
phone 0064 9 5256153
E-mail: jumbo@clear.net.nz
Norway
Center for Rare Disorders (includes Turner's Syndrome)
Rikshospitalet
Pilestredet 32
0027 Oslo
Tel: +47 22 86 84 59
Fax: +47 22 86 84 58
E-mail: ssss@rh.uio.no
Scotland
Scottish Turner Syndrome Society
1/8 Irving Court, Hardgate
Clydebank Dunbartonshire, Scotland G81 6BA
South Africa
Turner Syndrome Contact Group of South Africa
PO Box 16111
Dowerglen 1610
Edenvale, South Africa
Tel: & Fax: +27 11 453-0024
Email: josie@pixie.co.za
Spain
APAC
Luz Arriero 2 Casa 2, Bajo A
Sevilla, Spain 41010
ADAC Asociación para deficiencias de Crecimiento y Desarrollo
[Association for Deficiencies that affect Growth and Development]
Manuel Villalobos 41
Sevilla 41008, Spain
#Tf.: 34 68 346218
#Fax: 34 68 346202
E-mail: m.abascal.000@recol.es
Web site: www.geocities.com/HotSprings/Villa/4521/index.html
Swedan
Pargasgatan 7
Kisa, Sweden S-16479
William Gibonsvej 8
Partille, Sweden S43376
Svenska Turner Foreningen
Korngatan 7
Katrineholm, Sweden S-64152
Switzerland
Selbsthilfegruppe Turner Syndrom Schweiz
PO Box 285, Kappelisackerstr. 101
Ittigen, Switzerland CH-3063
- Short Stature Groups
-
- Human
Growth Foundation
- 7777 Leesburg Pike,
- Falls Church, VA 22043
- Phone: (800) 451-6434 or (703)
883-1773 Contact: Kimberly Frye
- Fax: (703) 883-1776
-
- Little
People of America (LPA), Inc.
- PO Box 9897
- Washington, DC 20016
- Phone: (800) 243-9273 or (301)
589-0730 Contact: Jean Elmendorf
- Fax:(707)745-8957
-
- Parents of Dwarfed Children
- 11524 Colt Terrace
- Silver Spring, MD 20902
- Phone: (301) 649-3275
-
- Short
Stature/ Dwarfism Information
Also See:
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