Tuberous sclerosis

Tuberous Sclerosis Alliance (National Tuberous Sclerosis Association prior to Dec 2000))

801 Roeder Road, Suite 750

Silver Springs, MD 20910

Phone: (800) 225-6872

E-mail: ntsa@ntsa.org

Web Site: www.tsalliance.org

Links to related web sites
Clinical Manifestations
Fact Sheet for Teachers: Tuberous Sclerosis
Seizure First aid: what do do when someone has a seizure

Tuberous Sclerosis Canada Sclerose Tubereuse
2443 New Wood Drive
Oakville, ON L6H 5Y3 CANADA
1-800-347-0252

International Organizations

Tuberous Sclerosis Association (TSA), United Kingdom
Tuberous Sclerosis International (TSI)
Swedish Tuberous Sclerosis Association
Australasian Tuberous Sclerosis Society
Israel Association Of Rare Diseases (Eitan)
New Zealand Tuberous Sclerosis Support Group

Also See:

National organizations regarding genetic conditions or birth defects
Brain Tumor Resource Guide, Massachusetts General Hospital
Tuberous Sclerosis, National Institute of Neurological Disorders and Stroke
Tuberous Sclerosis, radiology, University of Iowa
Tuberous Sclerosis, french
Epilepsy Foundation of America
American Epilepsy Society
Autism Society of America
Children & Adults with Attention Deficit Disorders
National Attention Deficit Disorder Association
National Kidney Cancer Association
National Kidney Foundation
National Institute of Diabetes & Digestive & Kidney Diseases
American Heart Association
American Lung Association
American Academy of Dermatologists

To locate a genetic counselor or clinical geneticist:

Revised January 23, 2009

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