Thalassemia

Thalassemia (Cooley anemia)

Cooley Anemia Foundation, Inc.: 129-09 26th Ave, Suite 203; Flushing, NY 11354-1131; Phone: 800.522.7222 or 718.321.2873; Fax: 718. 321.3340; E-mail: ncaf@aol.com; Web Site: www.thalassemia.org

Cooley Anemia Foundation American Hellenic Educational Progressive Association (AHEPA): 1909 Q Street NW; Washington DC 20009; (513) 339-6033

Thalassemia Hub, genomelink database

Northern California Comprehensive Thalassemia Center

Children's Hospital Oakland

747 52nd Street Oakland, CA 94609

Phone: 510.428.3168 or GeneHelp 510.540.2972 or 510.540.3295

Web Site: www.thalassemia.com

National organizations information on genetic conditions or birth defects
Information for Siblings and Family Members
Alpha Thalassemia, Lucile Packard Children's Hospital
Beta Thalassemia, Children's Hospital, Boston
American Hellenic Educational Progressive Association (AHEPA), Greek-American organization
Clinical thalassemia (major and minor), MEDLINEplus
Hemoglobinopathies, Division of Genetics, University of Rochester Medical Center (also in Cambodian, Laotian, Vietnamese), brochures, fact sheets - Alpha Thalassemia, Hemoglobin E, Beta Thalassemia, Hemoglobin C, Hemoglobin A, Hemoglobin D, Hemoglobin Lepore, Hemoglobin Arab, other
Joint Center for SickleCell and Thalassemic Disorders, Brigham & Women's Hospital
Massachusetts General Hospital
Thalassemia fact sheet, March of Dimes
Thalassemia article, MedicineNet
Thalassemia It's Your Choice, Genetics Division, University of Rochester Medical Center
Thalassemia pamphlets, amniocentesis, variety of languages, including Cambodian, California State Department of Health
Pamphlets in languages other than English, National Center for Maternal and Child Health
Association of Asian/Pacific Community Health Organizations, Oakland, CA
Ethnic Health Resource List, Utah
Southeast Asian Culture & Health, Office of Minority Health

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