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Sturge-Weber syndrome

The Sturge-Weber Foundation
P.O. Box 418
Mount Freedom, NJ 07970-0418
Telephone: 1-800-627-5482 (US) or (973) 895-4445
Fax: (973) 895-4846
Web Site:

Norwegian Foundation for Sturge-Weber syndrome Norsk Forening for Sturge-Weber syndrom
see also English version

Sturge-Weber Syndrome Support Group of New Zealand

Sturge-Weber syndrome family web page, regarding Sturge-Weber Syndrome (SWS), Kippel-Trenaunay Weber Syndrome (KTWS), and Port Wine Stains (PWS)

Sturge Weber Foundation, UK

Also See:

To locate a genetic counselor or clinical geneticist in your area:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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