Spina Bifida

(lipomeningocele, meningocele, myelomeningocele, anencephaly, neural tube defects)

Spina Bifida Association of America: 4590 MacArthur Blvd., NW, Suite 250, Washington, DC 20007-4226; Phone: 800.621.3141or 202.944.3285 - Fax: 202.944.3295; E-mail: sbaa@sbaa.org; SBAA Chapters; Real Stories Section

Spina Bifida Association of Canada: (L'Association de spina-bifida et d'hydrocéphalie du Canada)

Association for Spina Bifida and Hydrocephalus: ASBAH House, 42 Park Road, Peterborough, PE1 2UQ England; Web site: http://www.asbah.org/

International Federation for Hydrocephalus and Spina Bifida ("if"): Cellebroerstraat 16, B-1000 Brussels, Belgium; Tel: +32 (0)2 502 0413 - Fax: +32 (0)2 502 1129; E-mail: if@wanadoo.be

Queensland Association for People with Spina Bifida or Hydrocephalus: 21 Tillot St., Dutton Park, QLD 4102 Australia

Spina Bifida Association of Western Australia

Arbeitsgemeinschaft Spina bifida und Hydrocephalus (ASbH e.V.): Bundesverband Münsterstr.13, D-44145 Dortmund, Germany
Telefon (0231) 86 10 50-0 - Telefax (0231) 86 10 50-50

Scottish Spina Bifida Association

Also See:

National organizations information on genetic conditions or birth defects
Anencephaly information
Arnold Chiari Malformation Association
Association for Spina Bifida and Hydrocephalus of England
Associazione Piemontese Spina Bifida e Idrocefalo, Italy
Arbeitsgemeinschaft Spina bifida und Hydrocephalus (ASbH e.V.), Germany
Children with Spina Bifida: Folic Acid Links and Resource Page for Parents, Waisman Center, Wisconsin
Easter Seals
Folic Acid and Prevention of Neural Tube Defects Education, Council of Regional [Genetic] Networks
Folic Acid: Get it Now, North Carolina Department of Health
Folic Acid and the Prevention of Neural Tube Defects, Saskatchewan Institute on Prevention of Handicaps
General Information about Spina Bifida, National Information Center for Children and Youth with Disabilities (NICHCY)
Spina Bifida and Hydrocephalus Association of Nova Scotia
Spina Bifida Association of Victoria, Australia
Spina Bifida Association of South Australia
SBH Queensland, Association for People with Spina Bifida or Hydrocephalus
Spina Bifida March of Dimes Public Health Information Sheet

Legacy Manikins with spina bifida adapter, Chiari adapter, shunt adapter and cardiac overlays for heart defects, Legacy Products, 508 S Green, PO Box 267, Cambridge City, IN 47327, Phone 1-800-238-7951, E-mail: legacyez2b@aol.com, Basic manikin, adapter kits for various malformations and therapies sold separately.

To locate a genetic counselor or clinical geneticist in your area:

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