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Sickle Cell Anemia

American Sickle Cell Anemia Association
P.O. Box 1971, 10300 Carnegie Ave, Cleveland, OH 44106, Phone: 216.229.8600, Fax: 216.229.4500
URL: www.ascaa.org/
E-mail: ashc@cybernex.net
Support Groups
Online video
Sickle Cell Disease Association of America, Inc. (SCDAA), formerly know as the National Association for Sickle Cell Disease (NASCD)
200 Corporate Pointe, Suite 495, Culver City California 90230-8727, Phone: 310.216.6363 or 800.421.8453, Fax: 310.215.3722, E-mail: scdaa@sicklecelldisease.org
What is Sickle Cell Disease?
Education materials on Alpha Thalassemia, Beta Thalassemia, Hemoglobin C Trait (AC), Sickle Cell Trait (AS), Hemoglobin E Trait (AE)
Q & A: Any Questions?
Map of United States with links to state organizations
Uriel Owens Chapter, SCDAA, PO BOX 171371, 650 Minnesota Ave., 2nd Floor, Kansas City, KS 66117, 913.621.1713, owens@sicklecellkck.org
Sickle Cell Disease Association of Piedmont, NC
 
Sickle Cell Anemia Research Foundation (SCARF), 2625 Third Street, P.O. Box 206, Alexandria, Louisiana 71309, 877.722.7370, e-mail: scarf@sicklecelldisease.org

Regional Organizations, Clinics, Groups

 
Sickle Cell Information Center, Georgia Sickle Cell Center, Grady Health System, and Emory University Pediatric Hematology - Oncology, and the Sickle Cell Foundation of Georgia Inc. Emory University, Atlanta, GA, includes Frequently Asked QuestionsPowerPoint Tutorials, Sickle Cell Provider Video Course, World Wide Resources Teachers and Students
Comprehensive Sickle Cell Center, University of South Alabama
Cincinnati Comprehensive Sickle Cell Center
Facts About Sickle Cell Anemia, National Heart, Lung, and Blood Institute (NHLBI)
Datos Sobre La Anemia Falciforme (spanish, Facts About Sickle Cell Anemia), National Heart, Lung, and Blood Institute (NHLBI)
Sickle Cell Disease, Harvard University
Sickle Cell Disease, Quick Reference and Fact Sheet, March of Dimes
Joint Center for Sickle Cell and Thalassemic Disorders, Massachusetts General Hospital, Boston, MA
Practice Guidelines: Management of Pain in Sickle Cell Disease, American Academy of Family Physicians, 2000
Sickle Cell Association, TX Gulf Coast, 2626 S Loop West, Suite 245, Houston,TX 77054-2649 USA, 713-666-0300
SickleCell Kids.org, entertaining, informative, sickle cell site for children, Macromedia Flash Player 5 required
Also See:
 
National organizations with information on genetic conditions or birth defects
Clinical Alert: Drug Treatment for Sickle Cell Anemia, National Heart, Lung, and Blood Institute (NHLBI)
Sickle Cell Anemia information, Wellness Web
American Society of Hematology (ASH)
Globin gene server website, database of most known structural and quantitative globin mutations, variants of Hb S
Thalassemia Web Site, Children's Hospital, Oakland, CA, with review of diagnosis section

Education

Sickle Cell Slime-O-Rama Game, interactive “quiz show” that challenges kids to answer questions about Sickle Cell Disease, STARBRIGHT Foundation

To locate a genetic counselor or clinical geneticist in your area:
 
Professional Genetics Societies
Genetic clinics, centers, departments

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Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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