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National Retinoblastoma Parents Group
603 Fourth Range Rd
Pembroke, NH 03275
Phone: (603) 224-4085
Institute for Families of Blind Children
P.O.Box 54700, Mailstop 111
Los Angeles, Ca. 90054-0700
Phone: (213) 669-4649 Contact: Nancy Chernus-Mansfield
National Cancer Institute
Office of Cancer Communications
Center Drive, MSC 2580
Bethesda, MD 20892-2580
Cancer Information Service: 1-800-4-CANCER (1-800-422-6237) or TTY: 1-800-332-8615
R-BLASTOMA - electronic mailing list for retinoblastoma patients and their parents. To subscribe,  email: In the body of message, write only: SUBscribe R-BLASTOMA Yourfirstname Yourlastname
A web interface to subscribe also exists at: or contact G Frydman, Association of Cancer Online Resources, Inc.

Retinoblastoma resources

A Parent's Guide to Understanding Retinoblastoma

Retinoblastoma Foundation

Also See:


To locate a genetic counselor or clinical geneticist in your area:

Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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