Prune Belly syndrome

National Prune Belly Syndrome Association

30 Salem Blvd.

Naugatuck, CT 06770

Phone: (203) 729-6054 contact: Brian Beirne

E-mail: bbeirne@healthcon.com
Web site URL: http://healthcon.com

 

GUMS (Guardians/Grandparents United for Moral Support)

c/o Joyce Henderson

4512 Wilcox Pl.

Jamesville, NY 13078

Phone: (315) 492-0090

Also See:

• National organizations with information on genetic conditions or birth defects - variety of resources
• The National Organization for Rare Disorders Prune Belly Syndrome information

To locate a genetic counselor, or clinical geneticist in your area:

• Professional Genetics Societies
• Genetic clinics, centers, departments

   

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Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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