Proteus Syndrome
- Proteus
Syndrome Foundation
- Proteus Syndrome Foundation
4915 Dry Stone Dr.
Colorado Springs, CO 80918
- Phone: 719.660.1346 (contact:
Kim Hoag)
- E-mail: kimkhoag@adelphia.net
- Web Page: http://www.proteus-syndrome.org/
-
- Proteus
Syndrome Foundation, United Kingdom
-
Also See:
- Proteus
Syndrome, BPlecher article, eMedicina
- Proteus
Syndrome, Birth Disorder Information Directory
- Inheritance
in Man (OMIM) - lists references
- Proteus information,
Online Mendelian
Inheritance in Man (OMIM) - includes references
- Proteus
Syndrome, Contact a family, United Kingdom
- PTEN
gene, Genetics Home Reference National Library Medicine,
NIH
- Proteus
Syndrome Research,
LGBiesecker, National Human Genome Research Institute (NHGRI), National Institutes
of Health (NIH)
- Proteus
Syndrome information from The National Organization
for Rare Disorders (NORD)
- Proteus'
Syndrome, WhoNamedIt
- Proteus
Syndrome, infant, Indian Pediatrics
- National
organizations information on genetic conditions or birth defects
- Terms
and Definitions associated with Proteus Syndrome, compiled
by Susan Beachler
- Information
for Siblings and Family Members
- National
organizations - information on genetic conditions/birth defects variety of resources
- Limb
anomalies, resources for different size shoe and glove exchange, etc.
- Neurofibromatosis
Resources
- Patient
Brochure (older version), Newsletter
- Spring 1997, Newsletter
- Fall 1997
To
locate a genetic counselor, or clinical geneticist in your area:
Revised January 23, 2009
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