Proteus syndrome

Proteus Syndrome

Proteus Syndrome Foundation

Proteus Syndrome Foundation
4915 Dry Stone Dr.
Colorado Springs, CO 80918

Phone: 719.660.1346 (contact: Kim Hoag)

E-mail: kimkhoag@adelphia.net

Web Page: http://www.proteus-syndrome.org/

Diagnostic Criteria

Proteus Syndrome Foundation, United Kingdom

What is Proteus Syndrome & Common Sign

Also See:

Proteus Syndrome, BPlecher article, eMedicina
Proteus Syndrome, Birth Disorder Information Directory
Inheritance in Man (OMIM) - lists references
Proteus information, Online Mendelian Inheritance in Man (OMIM) - includes references
Proteus Syndrome, Contact a family, United Kingdom
PTEN gene, Genetics Home Reference National Library Medicine, NIH
Proteus Syndrome Research, LGBiesecker, National Human Genome Research Institute (NHGRI), National Institutes of Health (NIH)
Proteus Syndrome information from The National Organization for Rare Disorders (NORD)
Proteus' Syndrome, WhoNamedIt
Proteus Syndrome, infant, Indian Pediatrics
National organizations information on genetic conditions or birth defects
Terms and Definitions associated with Proteus Syndrome, compiled by Susan Beachler
Information for Siblings and Family Members
National organizations - information on genetic conditions/birth defects variety of resources
Limb anomalies, resources for different size shoe and glove exchange, etc.
Neurofibromatosis Resources
Patient Brochure (older version), Newsletter - Spring 1997, Newsletter - Fall 1997

To locate a genetic counselor, or clinical geneticist in your area:

Revised September 2, 2004

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