Progeria syndrome

(Hutchinson-Gilford Syndrome, Werner Syndrome, Cockayne Syndrome, Rothmund-Thomson Syndrome)

P.O. Box 3453

Peabody, MA 01961-3453

Phone: 978.535.2594

Fax: 978.535.5849

The Sunshine FoundationŽ (for children with terminal, chronic illnesses such as progeria, dedicated to making the dreams of these children possible)

1041 Mill Creek Drive

Feasterville, PA 19053

Phone: 1.800.767.1976 or 215.396.4770

Fax: 215.396.4774

E-mail: philly@sunshinefoundation.org

PO Box 255, 5400 C.R. 547 North

Loughman, FL 33858

Phone: 800.457.1976 or 863.424.4188

Fax: 863.424.4360

Sunshine Foundation, Volunteer Chapters California, Colorado, Delaware, District of Columbia, Georgia, New Jersey, Pennsylvania, West Virginia

Black Hills (PO Box 5009, Rapid City, SD 57709-5009, Phone: 605.393.0426, Fax: 605.393.1369, Fax On Demand: 605.393.0426, option 10)

International Progeria Registry

c/o W.Ted Brown, M.D., Ph.D.

NY State Institute for Basic Research in Developmental Disabilities

1050 Forest Hill Road

Staten Island, NY 10314

Phone: 718.494.5363

Fax: 718.494.1026

Also See:

National organizations with information on genetic conditions or birth defects

Hayley's Progeria Page, individual's page

Hutchinson Gilford Progeria Syndrome, The National Organization for Rare Disorders

Progeria, Dr.Koop Medical Encyclopedia

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