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Progeria syndromes

(Hutchinson-Gilford Syndrome, Werner Syndrome, Cockayne Syndrome, Rothmund-Thomson Syndrome)

Progeria Research Foundation
P.O. Box 3453
Peabody, MA 01961-3453
Phone: 978.535.2594
Fax: 978.535.5849
Web site:
Friends of Progeria Foundation, Huron, SD
The Sunshine Foundation (for children with terminal, chronic illnesses such as progeria, dedicated to making the dreams of these children possible)
1041 Mill Creek Drive
Feasterville, PA 19053
Phone: 1.800.767.1976 or 215.396.4770
Fax: 215.396.4774
Web site:

Sunshine Foundation, Dream Village
PO Box 255, 5400 C.R. 547 North
Loughman, FL 33858
Phone: 800.457.1976 or 863.424.4188
Fax: 863.424.4360
Web site:
Sunshine Foundation, Volunteer Chapters California, Colorado, Delaware, District of Columbia, Georgia, New Jersey, Pennsylvania, West Virginia
Black Hills (PO Box 5009, Rapid City, SD 57709-5009, Phone: 605.393.0426, Fax: 605.393.1369, Fax On Demand: 605.393.0426, option 10)

International Progeria Registry
c/o W.Ted Brown, M.D., Ph.D.
NY State Institute for Basic Research in Developmental Disabilities
1050 Forest Hill Road
Staten Island, NY 10314
Phone: 718.494.5363
Fax: 718.494.1026

Also See:

To locate a genetic counselor or clinical geneticist in your area:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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