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Porphyria

ALAD-Deficiency Porphyria (ADP), Acute Intermittent Porphyria (AIP), Congenital Erythropoietic Porphyria (CEP), Porphyria Cutanea Tarda (PCT), Hepatoerythropoietic Porphyria (HEP), Hereditary Coproporphyria (HCP), Variegate Porphyria (VP), Erythropoietic Protoporphyria (EPP) or Protoporphyria

American Porphyria Foundation (APF)
P.O. Box 22712
Houston, Texas 77227
Phone: 713.266.9617
E-mail: porphyrus@aol.com
Web page:www.porphyriafoundation.com/
Canadian Porphyria Foundation
Box 1206
Neepawa, Manitoba, Canada R0J 1H0
Telephone: (204) 476-2800
Fax: (204) 476-2800
E-mail: porphyria@cpf-inc.ca
Web site: www.cpf-inc.ca/
 
American Liver Foundation
1425 Pompton Avenue
Cedar Grove, NJ 07009
Phone: 1-800-223-0179

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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