Polycystic Kidney Disease

Polycystic Kidney Disease

PKD Foundation (Polycystic Kidney Disease Foundation): Phone: 1-800-PKD-CURE (800.753.2873) or 816.931.2600; Fax: 816.931.8655; E-mail: pkdcure@pkdcure.org; Web site: www.pkdcure.org/home.htm

National Kidney Foundation: 30 East 33rd Street; New York, NY 10016; Phone: 800.622.9010; Web site: www.kidney.org/

Also See:

National organizations - information on genetic conditions or birth defects
Creating a Healthy Menu, Computer Program for Kidney Patients and Others
Kidney Foundation of Canada
Kidney Transplant/Dialysis Association, Inc.
Australian Kidney Foundation
National Kidney Research Fund, United Kingdom
Other kidney disease organizations
Polycystic Kidney Disease information, National Institute of Diabetes and Digestive and Kidney Diseases of the National Institutes of Health (NIDDK)
Renal Family Cookbook
World Kidney Fund, for families in developing countries

International Nephrology:

Australian and New Zealand Society of Nephrology
Brazilian Society of Nephrology
International Society of Nephrology (ISN)
International Society for Peritoneal Dialysis (ISPD)
Italian Society of Nephrology
Japanese Society of Nephrology
Renal Association (United Kingdom), for families developing countries, who have little or no access to healthcare facilities

Reference:

S Dobin, et al. 1993. Segregation analysis of autosomal dominant polycystic kidney disease. Genetic Epidemiology 10(3)189-200.

To locate a genetic counselor or clinical geneticist in your area:

Revised January 23, 2009

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