Polycystic Kidney Disease

PKD Foundation (Polycystic Kidney Disease Foundation)

Phone: 1-800-PKD-CURE (800.753.2873) or 816.931.2600

Fax: 816.931.8655

E-mail: pkdcure@pkdcure.org

Web site: www.pkdcure.org/home.htm

National Kidney Foundation

30 East 33rd Street

New York, NY 10016

Phone: 800.622.9010

Web site: www.kidney.org/

Also See:

• National organizations - information on genetic conditions or birth defects
• Creating a Healthy Menu, Computer Program for Kidney Patients and Others
• Kidney Foundation of Canada
• Kidney Transplant/Dialysis Association, Inc.
• Australian Kidney Foundation
• National Kidney Research Fund, United Kingdom
  
• Other kidney disease organizations
• Polycystic Kidney Disease information, National Institute of Diabetes and Digestive and Kidney Diseases of the National Institutes of Health (NIDDK)
• Renal Family Cookbook
• World Kidney Fund, for families in developing countries

International Nephrology:

• Australian and New Zealand Society of Nephrology
  
• Brazilian Society of Nephrology
  
• International Society of Nephrology (ISN)
  
• International Society for Peritoneal Dialysis (ISPD)
  
• Italian Society of Nephrology
  
• Japanese Society of Nephrology
  
• Renal Association (United Kingdom), for families developing countries, who have little or no access to healthcare facilities

Reference:

• S Dobin, et al. 1993. Segregation analysis of autosomal dominant polycystic kidney disease. Genetic Epidemiology 10(3)189-200.
  

To locate a genetic counselor or clinical geneticist in your area:

• Professional Genetics Societies
• Genetic clinics, centers, departments

   

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu

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