Phenylketonuria (PKU)
- Children's PKU Network (CPN )
- 1520 State St.,Suite #240
- San Diego, CA 92101
- Phone: (619) 233-3202
- Fax: (619) 233-0838
- E-mail: magol@gte.net or pkunetwork@aol.com
- Resources including videos and pamphlets for children
PKU News
- PKU Parents
- 8 Myrtle Lane
- San Anselmo, CA 94960
- Phone: (415) 457-4632
-
- National Phenylketonuria Foundation
- 6301 Tejas Drive
- Pasadena, TX 77503
- Phone: 713-487-4802
-
- National PKU News
- 6869 Woodlawn Avenue NE - Suite 116
- Seattle, WA 98115
- 206-525-8140 - Voice/FAX
- Contact: Virginia Schuett
-
- Kansas PKU Network
- E-mail:makingsd@ruraltel.net
- (785) 885-4434
Also See:
- You and PKU booklet by
Margaret Taylor and Virginia Schuett (Waisman Center on Mental Retardation and Human
Development) (1978),
- University of Wisconsin Press,
1930 Monroe St., Madison, WI 53711,
Phone: 608-263-1101, Fax: 608-263-1132.
$5.00 plus shipping and handling.
-
- Texas camp for children with PKU of all ages, July 1998
- Contact Barbara Dominguez 713-500-5765, Marcie Aguilar 210-704-2651, or Dr. Hope Northrup
713-500-5760
Revised January 23, 2009
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