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Opitz syndrome

[Opitz-G/BBB (Opitz-Frias), Opitz FG (Opitz-Kaveggia), or Opitz-C (Trigonocephaly) syndromes]

Opitz Family Network
P.O. Box 516
Grand Lake, CO 80447 USA
Phone: 970.627.8935 (Evenings, Weekends and all day most Mondays)
Smith-Lemli-Opitz/RSH syndrome (SLO/RSH) Advocacy and Exchange Syndrome
32 Ivy Lane
Glen Mills, PA 19342
Phone: 610.361.9663
Opitz Trigonocephaly Syndrome Family Network (Opitz-C, of the Opitz Family Network)
11758 Biscayne Drive
Baton Rouge, LA 70814
Web page:
FG Syndrome
Canadian Opitz Family Network
P.O. Box 892
Errington, BC Canada V0R 1V0
Phone:  250.954.1434 or 250.954.7524
Web site:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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