Opitz syndrome
[Opitz-G/BBB (Opitz-Frias), Opitz FG (Opitz-Kaveggia), or
Opitz-C (Trigonocephaly) syndromes]
- Opitz Family Network
- P.O. Box 516
- Grand Lake, CO 80447 USA
- Phone: 970.627.8935 (Evenings, Weekends and all day most
Mondays)
- E-mail: opitznet@rkymtnhi.com
-
- Smith-Lemli-Opitz/RSH
syndrome (SLO/RSH) Advocacy and Exchange Syndrome
- 32 Ivy Lane
- Glen Mills, PA 19342
- Phone: 610.361.9663
- E-mail: bhook@erols.com
- URL: members.aol.com/slo97/index.html
- Opitz
Trigonocephaly Syndrome Family Network (Opitz-C, of the Opitz Family Network)
- 11758 Biscayne Drive
- Baton Rouge, LA 70814
- 504.275.7556
- E-mail: otsfn@geocities.com
- Web page: www.geocities.com/HotSprings/Villa/1407/
- FG Syndrome
- E-mail: fgsyndrome@geocities.com
-
- Canadian Opitz
Family Network
- P.O. Box 892
Errington, BC Canada V0R 1V0
Phone: 250.954.1434 or 250.954.7524
Email: opitz@apollos.net
- Web site: www.apollos.net/arena/opitz/home.html
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Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu
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