Neuromuscular Support Group

Neuromuscular conditions information

[Duchenne and Becker muscular dystrophies, Emery-Dreifuss muscular dystrophy, Facioscapulohumeral muscular dystrophy, Limb-girdle muscular dystrophy, Congenital muscular dystrophy, Myotonic dystrophy, Non-dystrophic myotonias and periodic paralyses, Myotubular/centronuclear myopathy, Spinal muscular atrophy, Hereditary motor and sensory neuropathy Ia, Familial amyotrophic lateral sclerosis, rare neuromuscular disorders]

Neuromuscular information

Muscular dystrophy or muscular atrophy resources, University of Kansas Medical Center
Neuromuscular Diseases, Muscular Dystrophy Association
Neuromuscular diseases information- American Academy of Neurology
MuscleNet, Muscular Dystrophy Association of Italy (UILDM) and the University of Padua
Neuromuscular Compendium links to muscle biology, histology, neurology, DNA research (Page goes to index, due to Neuromuscular page being under construction as of 17 August 2004)
Neuromuscular Disease Center, Washington University School of Medicine, St. Louis, MO
WeMove: Education and Awareness for Movement Disorders, Mt Sinai Medical Center, NY
Neurosciences on the Internet
Leiden Muscular Dystrophy pages, Department of Human Genetics, Leiden University Medical Center, Netherlands
Periodic paralysis resources, University of Kansas Medical Center
Huntington Disease: Making an Informed Choice brochure (pdf file format), Myotonic Dystrophy: Making an Informed Choice brochure (pdf file format), Spinocerebellar Ataxia: Making an Informed Choice About Genetic Testing brochure, Genetic Testing for Neurological Conditions, Medical Genetics and Neurology, University of Washington, Seattle, WA, USA

Also See:

National organizations information on genetic conditions or birth defects
Muscular Dystrophy, Merck Manuel

To locate a genetic counselor or clinical geneticist in your area:

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