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NF I | NF II | Regional Groups | Children | Camps | Genetics Clinics

National Neurofibromatosis Foundation, Inc.
95 Pine Street, 16th Floor
New York, NY 10005
Phone: 212 344-6633 or toll free: 1-800 323-7938
Contact: Peter Bellermann
Fax: 212 747-0004
Web page: or

Neurofibromatosis, Inc. - USA
8855 Annapolis Rd
Lanham, MD 20706-2924
Phone: (800) 942-6825 or (301) 577-8984
Contact: Mary Ann Wilson
Fax: (301) 577-0016
Web site:
State and Regional Chapters and Affiliates 

The Neurofibromatosis Association UKA Brief History of Neurofibromatosis

British Columbia Neurofibromatosis Foundation, Canada, Helping Your Child Cope with Neurofibromatosis

Acoustic Neuroma Association
600 Peachtree Pkwy, #108, Cumming, GA 30041-6899
Phone: 770.205.8211, Fax 770.205.0239
Web site:
Frequently asked questions
Glossary of terms
Local support Groups
Regional / local groups:
Neurofibromatosis, Inc. KS
PO Box 1792
Hutchinson, KS 67504-1792
Phone: (316) 669-8453 Contact: Nancy Prieb
National Neurofibromatosis
1132 Timberline Dr
Fenton, MO 63026
Phone: (314) 343-1240
Kansas City Neurofibromatosis Support Group
8806 Birch
Prairie Village, KS 66207
Contact: Lester Palmer

Summer Camp for Teens
Fran Morris, NNFF
95 Pine St.; 16th Floor
NY, NY 10005
Phone: 800.323.7938
August 1-11, 1998, Utah, $525 per camper + transportation, limited to 40

Children and Adolescent Issues

NF-2 and Acoustic Neuroma (Central Neurofibromatosis or Bilateral Acoustic Neurofibromatosis, a cause of Acoustic Neuroma, or Vestibular Schwannoma)

Also See:

To locate a genetic counselor or clinical geneticist

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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