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Muscular Dystrophy / Atrophy


Duchenne Muscular Dystrophy (pseudo- hypertrophic)
Becker Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy (Landouzy-Dejerine)
Limb-Girdle Muscular Dystrophy (including Juvenile Dystrophy of Erb)
Ophthalmoplegic Muscular Dystrophy
Distal Muscular Dystrophy
Muscular Dystrophy of Late Onset
Myotonic Dystrophy (Steinert's Disease)
Congenital Muscular Dystrophy
Myotonias:
Myotonia Congenita (Thomsen's Disease), Paramyotonia Congenital
Metabolic Disease of Muscle:
Phosphorylase Deficiency (McArdle's Disease), Acid Maltase Deficiency (Pompe's Disease), Phosphofructokinase Deficiency (Tarul's Disease), Debrancher Enzyme Deficiency (Con's or Forbe's Disease), Carnitine Deficiency, Carnitine Polmityltransferase Deficiency, Periodic Paralysis.
Less Common Myopathies:
Central Core Disease, Nemoline Myopathy, Mitochondrial Disease, Myotubular Myopathy, ldiopathic Myopathy, Malignant Hyperthermia (Hyperprexia).
Disorders of the Motor Neurone:
Spinal Muscular Atrophies: Motor Neurone Disease Infantile Progressive Spinal Muscular Atrophy (Werdnig-Hoffmann Disease), Juvenile Progressive Muscular Atrophy (Kugelberg- Welander Disease), Benign Congenital Hypotonia, Adult Progressive Spinal Muscular Atrophy (Aran-Duchenne Type)
Diseases of Peripheral Nerve:
Peroneal Muscular Atrophy (Charcot-Marie-Tooth Disease), Friedreich's Ataxia, Dejerine-Sottas Disease.
Disorders of the Nerve - Muscle Junction:
Diseases of the Neuromuscular Junction:
Myasthenia Gravis, Eaton-Lambert Myasthenic Syndrome

Muscular Dystrophy Association
3300 E Sunrise Dr., Tucson, AZ 85718-3208
Phone: 800.572.1717, or 520.529.2000 - Fax: 520.529.5300
E-mail: mda@mdausa.org
Web site: www.mdausa.org 
Muscular Dystrophy Association of Canada
Association Canadienne de la Dystrophie Musculaire
2345 Yonge Street, Suite 900, Toronto, Ontario, Canada M4P 2E5
Phone: 416.488-2699 - Fax: 416.488-7523
Duchenne Parent Project: Becker and Duchenne muscular dystrophy
125 Marymont Court, Middletown, Ohio 45042

Spinal Muscular Atrophy Resources (including Werdnig-Hoffman Disease and Kugelberg-Welander Disease)

SMA mini-fact sheet, National Institute of Neurological Disorders and Stroke, National Institutes of Health, Bethesda, MD, Sept. 1997
Families of Spinal Muscular Atrophy
P.O. Box 196, Libertyville, IL 60048-0196
Phone:  800.886.1762
Web page: http://www.fsma.org/
See other SMA links

Online resources:

Note: The following resources have links to numerous online resources on a variety of neuromuscular diagnoses, not just the diagnosis implyed by their name.

Neuromuscular information

International Organizations:

Argentina
Association Distrofia Muscular
Cordoba 5428, BUENOS AIRES

Armenia
Charity Association of Neurohereditary Diseases
Amiryan str. 10. Apt. 15, YEREVAN, 375010, Republik of Armenia
Phone: 374.1.56.17.81 - Fax: 374.1.52.59.19
E-mail: alamat@arminco.com 

Australia
Muscular Dystrophy Association of New South Wales
Locked Bag 9932, BEACONSFIELD NSW 2014
Phone: 61.2 9697 9111 - Fax: 61.2 9697 9092
E-mail: mdansw@gunnsoft.com.au 

Muscular Dystrophy Association Inc. South Australia
GPO Box 414, ADELAIDE SA 5001
Phone:  61.8 8234 5266 - Fax:  61.8 8234 5866
E-mail: info@mdasa.org.au
Web site: www.mdasa.org.au

Muscular Dystrophy Association of Canberra
C/- GPO Box 414, Adelaide SA 5001

Muscular Dystrophy Association of Tasmania
18 Chettle Street, Devonport TAS 7310
Phone: 61.3 64 249 624 - Fax:  61.3 64 249 624

Muscular Dystrophy Association of Western Australia
PO Box 328, West Perth WA 6872
Phone: 61.8 9300 8728 - Fax: 61.8 9346 3487

Queensland Muscular Dystrophy Assoiation
Locked Bag 3000, Spring Hill QLD 4004
Phone: 61.7 3831 2444 - Fax: 61.7 3831 2666

Muscular Dystrophy Association Inc
PO Box 1050, Moonee Ponds, Victoria 3039
Phone: 61.3 9370 0477 - Fax: 61.3 9370 0393
E-mail: bms@mda.org.au
Web site: www.mda.org.au

Belgium
Assoc Belge contre les Maladies Neuro-Muscularies
Rue du Blanc Bios 2, B-1360  PERWEZ
Phone: 081 65 5885 - Fax: 081 65 5885
E-mail: abmm@village.uunet.be
Web site: http://www.awiph.be/  

Flemish Muscular Disorders Association
Vlaamse Vereniging Neuromusculaire Aadoeningen, NEMA
Hutsepotstraat 50, B-9052 Zwijnaarde - Gent
Phone: 32.9 222 64 46 - Fax: 32.9 222 64 46
E-mail: nema@pandora.be
Web site: http://users.pandora.be/Nema/ 

Birmuda
The Birmuda Students MDA
PO Box 596, Mbarara, Uganda

Brazil
Assoc Brasileria de Distrofia Muscular
R Eng Teixerie Soares 715, 955 055 Butanta, Sao Paulo SP
Phone: 55.11 814 8562 - Fax: 55.11 815 4272

British Honduras
British Honduras Muscular Dystrophy Association
Insituto Hondureno do Rehabilitacion
Apartado Postal # 1056, Tegucigalpa Municipio del Distrito Central Honduras
Phone: 504.32 8761

Bulgaria
Bulgarian Neuromuscular Diseases Association
96. Pliska street entrance 2, App 4 P.Box 10, BG-7004 ROUSSE
Phone: 359.82 452 055 - Fax: 359.82 237 045
E-mail: rousse@lgi-bg.org

Canada
Muscular Dystrophy Association of Canada
2345 Yonge Street, Suite 900, Toronto, ON  M4P 2E5
Phone: 1.416 488 7523 - Fax: 1.416 488 7523
E-mail: info@mdac.ca
Web site: www.mdac.ca


China
China Muscular Dystrophy Association
Div Neuromuscular Disorders Research
Chinese Pla Gen Hospital, 28 Fuxin Road, Beijing 100853
Phone: 86.688 7329 3721 - Fax: 86.821 7073
E-mail: dgshen@bj.col.com.cn

Colombia
Colombia Muscular Dystrophy Association
Fund Omega
Carrara 30 no 89-79 (la Castellana)  Bogota
Phone: 57.1 236 5004

Croatia
Union of Muscular Dystrophy Societies of Croatia
Nova Ves 44, 10000 Zagreb
Phone: 385.1 466 6849 - Fax: 385.1 466 6849
E-mail: marija.sostarko@zg.tel.hr

Czech Republic
Czech Republic Muscular Dystrophy Association
Petyrkova 1953/24, 148 00 Praha 4 - Chodov
Phone: 420.7.9337 77 - Fax: 420.7.9337 77

Denmark
Muskelsvindfonden
Kingsvang Alle 23, DK-8000 AARHUS C
Phone: 45.8946 2222 - Fax: 45.3962 2287
E-mail: mrf@muskelsvindfonden.dk 
Web site: www.muskelsvindfonden.dk 

Dominica
Instituto de Neurosciencias y Especialidades
Club Rotario 67, En Sanche Ozama, Santo Domingo   

Egypt
Egypt Muscular Dystrophy Association
19 Elmesafer Khana Street, Elgomrok_Alexandria  21111

Estonia
Estonian Muscular Dystrophy Association
Department of Neurology and Neurosurgery
Mustamae Hospital, Sutiste tee 19, EE0108 TALLINN

Finland
Lihastautilitto RY De Meskel Handikappades
Forbund FR, Lantinen Pitkakatu 35, 20100 TURKU
Phone: 358.225 00233 - Fax: 358.225 35 503

France
AFM Association Francaise contre les Myopathies
13 Place de Rungis, 75 013 PARIS
Phone: 33.1 44 16 2727 - Fax: 33.1 44 16 22 62
E-mail: afm@mail.afm.genethon.fr
Web site: www.afm-telethon.asso.fr 

Germany
Deutsche Gesellschaft fur Muskellkranke eV
Im Moos 4, 79112  FREIBURG
Phone: 49.7 665 7667 20 - Fax: 49.665 9447 20
E-mail: DGM_BGS@t-online.de
Web site: www.dgm.org 

Greece
MDA Hellas - Greece
296, Kifissias Avenue and Navarinou Str, 15232 Halandri, Athens

Guam
Guam Muscular Dystrophy Association
Guam Lytico and Bodig Assoc Ireland, PO Box 1458, Agana  96910
Phone: 671.472 3581 - Fax: 671.472 3583

Guatemala
Assoc Gutemalteca de Rehabilitacion de Lisiados
6a Avenida "A" 36-01, zona 11, Guatemala City, Guatemala, Central America
Phone: 502.76 7295 - Fax: 502.76 2365

Hungary
Hungary Muscular Dystrophy Association
National Federation of the Assoc of Persons with Disabilities
H - 1300 Badape St., PO Box 141

India
All India Muscular Dystrophy Association
Anaj Mandi, Nabha Gate, PATIALA 147 001
Phone: 91.175 215 786 - Fax: 91.175 200 786
E-mail: aditi98172@yahoo.com

India Muscular Dystrophy Association
M.I.G.72, A.P.H.B. Colony, Machilipatnam-521 001. A.P. India
Phone: 91.086 722 817

Muscular Dystrophy Support Group, South India
E-mail: ranil@vsnl.com

Ireland
Ireland Muscular Dystrophy Association
Carmichael House, North Brunswick Street, Dublin 7
Phone: 353.1 872 1501 - Fax: 353.1 872 4482

Israel
Israel Muscular Dystrophy Patients Association
Rashi street 46-1, Rishon le Zion 75308
Phone: 972.3 958 3439
E-mail: ygold1@bezegint.net

Israel Society for Neuromuscular Diseases
Alyn Hospital Olswanger Street, PO Box 9117
Kiryatyevel, Jerusalem
Phone: 972.249 4222 - Fax: 972.243 7388

Italy
Unione Italiana Lotta alla Distrofia Muscolare
Via P.P. Vergerio, 17 - 35126 Padova, UILDM Secretariat
Phone: 39.49 802 1002 - Fax: 39.49 802 2509
E-mail: dmredaz@tin.it
Web site: www.uildm.org 

Japan
Japan Muscular Dystrophy Association
National recuperations Education Center
2-2-8 Nishi-Waseda-Edu Center, Sinjuko-Ku, Tokyo 162
Phone: 81.5273 2930 - Fax: 81.35 215 1735
E-mail: yk@socrates.berkeley,edu

Jordan
Jordan Muscular Dystrophy Association
Al-Hussein Society for Rehabilitation, PO Box 5102

Korea
Korea Muscular Dystrophy Association
75-9 Bampopong, Seochogu, SEOUL
Phone: 86.02 532 3336

Latvia
Latvia Muscular Dystrophy Association
PO Box 437, Grondnas 40-2, Latvia LV 5417
Phone: 371.56 006

Lithuania
Lithuanian Neuro-muscular Association
Eiveniu, 2, KAUNAS 3007
Phone: 370.7 228 753 - Fax: 370.7 220 733

Malaysia
Malaysia Muscular Dystrophy Association
13 Jalan 12/10, 47200 Petalign Jaya
Selangor Dural Ehsan

Malta
Muscular Dystrophy Group
4, Gzira Road, Gzira GZR 04
Phone: 356.346 688 - Fax: 356.318 024
E-mail: mdg@mdgmalta.com
Web Site: www.mdgmalta.com

Mexico
Sociedad Mexicana de la Distrofia Muscular AC
Peten No 185, Col Narvarte, Delegacion Genito Juarez 03110D
Phone: 52.52 3 90 03

Moldova
Moldovian Myopathy Association
2001, str. Bulgara 24/B2, Chisinau, Republic Moldova
Phone: 3732.27 26 87
E-mail: vtonu@mednet.md

Morocco
Assoc Marocaine Contre Les Myopathies
BP 5668, Rabat Institut, RABAT
Phone: 212.7 75 05 39

New Zealand
New Zealand Muscular Dystrophy Association
PO Box 16-238, Sandringham, Auckland
Phone: 64.9 815 0247 - Fax: 64.9 815 7260
E-mail: director@mda.org.nz
Web site: www.mda.org.nz

Norway
Norway Muscular Dystrophy Association
Foreningen for Muskelsyke, P.B. 4395 Torshou, 0402 OSLO
Phone: 47.2300 8080/81 - Fax: 47.2300 8109/19

Pakistan
Muscular Dystrophy Association of Pakistan
Mehran Medicine Market, College Road, Rawal Pindi
Phone: 92.051 555 950 - Fax: 92.051 539 950
E-mail: drkhamaj@isb.paknet.com.pk

Papua New Guinea
Papua New Guinea Muscular Dystrophy Association
C/- Dauli Teachers College, PO Box 16, TAARI, SHP
Phone: 675.508 080 - Fax: 675.508 179

Peru
Asociacion de Distrofia Muscualr del Peru - ADM Peru
Av. Del Ejercito 660-F, Lima 18
Phone: 51.1 442 0407
E-mail: setemin@pop1.terra.com.pe
Web site: http://admperu.cjb.net 

Poland
Polish Neuromuscular Association
SW. BONIFACEGO 10, PL-02-914 WARSZAWA
Phone: 48.642 7507 - Fax: 48.642 7507
Web site: www.idn.org.pl/tzchm 

Portugal
Portugal Muscular Dystrophy Association
APMG.DNM - Hospital de Santa
Maria - Centro Estudos, Av Prof Egas Moniz, P-1699 LISBOA
Phone: 351.1 797 6882 - Fax: 351.1 795 7474

Romania
Asociatia Distoficilor Muscular din Romania
Str Bailornr 197, Vilcele Jud, COVASNA
Phone: 40.067 315 665 - Fax: 40.067 315 665

Romania
Associatia Distroficilor Muscular din Romania
Bailornr 197, Vilcele Jud, COSVANA
Phone: 40.1 613 6480

Russia
Myafond Charity Myasthenic Foundation
Chasovaya Street 20, 125315, MOSCOW
Phone: 7.095 151 26 51 - Fax: 7.095 151 26 51

Russia Muscular Dystrophy Association
Rublevskoeshosse, d 44-1 Apt 162
121609, MOSCOW
Phone: 7.095 412 9158 - Fax: 7.314 632 2826

Singapore
Singapore Muscular Dystrophy Association
Phone: 1.314 632 6981 - Fax: 1.314 632 2826

Slovenia
Slovenia Muscular Dystrophy Association
Linhartova 1/111, 1000, LJUBLJANA
Phone: 386.61 17 20 500 - Fax: 386.61 132 8142
E-mail: dds@se.net

South Africa
Muscular Dystrophy Foundation of South Africa
National Office, PO Box 1535, PINEGOWRIE  2123
Phone: 27.011 789 7634 - Fax: 27.011 89 7634
E-mail: national@mdsa.org.za
Web site: www.mdsa.org

Muscular Dystrophy Foundation of South Africa
National Office - Johannesburg, C/- PO Box 1535, PINEGOWRIE  2123

Spain
Association Espanola de Enfermedades Musculares
Gran Via Corts Catalanes 562, 8011, BARCELONA
Phone: 34.3 45 16 544 - Fax: 34.3 45 16 904
E-mail: asem15@suport.org

Sweden
Swedish Assoc of Neurogically Disabled
Box 3284, S-10365, Stockholm
Phone: 46.8 677 7010 - Fax: 46.8 30 14 10
E-mail: nhr@nhr.se

The Swedish National Association for Disabled Children
Box 6607, S-11384, Stockholm
Phone: 46.736 2600 - Fax: 46.8 30 14 10
E-mail: mail@riks.rub.se
Web site: www.rbu.se 

Switzerland
Association Suisse Romande contre la Myopathie
Chaemin de la Traverse 12, Case postale 179
CH-1170 AUBONNE
Phone: 41.21 808 7411 - Fax: 41.21 808 8111
E-mail: asrm@planet.ch
Web site: www.asrm.ch 

Switzerland Muscular Dystrophy Association
Swiss Foundation for Research on Muscular Diseases
CHemin des Jorkils 4, CH-2016 Cortailod
Phone: 41.32 842 47 38 - Fax: 41.32 842 47 38
E-mail: fsrm.rogan@caramail.com

Taiwan
Taiwan Muscular Dystrophy Association
No 100, Shin-Chuan 1st Road, Department of Neurology
Kaohsiung Medical College, KAOHSIUNG 807
Phone: 886)7 312 1101 - Fax: 886.7 323 4237
E-mail: geng@mail.nsysu.edu.tw

The Netherlands
Vereniging Spierziekten Nederland
Lt Gen can Heutslaan 6, 3743 JN, BAARN
Phone: 31.35 548 0480 - Fax: 31.35 548 0499
E-mail: vsn@vsn.nl

Turkey
Neuromuscular Disorders Association of Turkey
Hatboyu Cad no 12, Yesilkoy 34800, ISTANBUL
Phone: 90.212 573 0975 - Fax: 90.212 663 0168
E-mail: kashasder@turk.net

Ukraine
Ukrainian Muscular Dystrophy Association ERB
55/11 Shevchenko Street, Lviv-39, 79039
Phone: 380.322 330047
E-mail: erb@lviv.net 

United Kingdom
Muscular Dystrophy Campaign
7-11 Prescott Place, LONDON  SW4 6BS
Phone: 44)171 720 8055 - Fax: 44.171 498 8963
E-mail: info@muscular-dystrophy.org
Web site: www.muscular-dystrophy.org  

Uruguay
Centro De Ayuda Social A Los Enfermos Neuromuscular
Silcinesa 3030, MONTENIDEO
Phone: 598.81 6823 - Fax: 598.81 0045

Venezuela
Coundacion de la Distrofia Muscular
Conjunto Res Jarkin Bello Camp, Apto B-1D Ave Libertado Chacac, CARACAS 1060
Phone: 58.2 262 15 65 - Fax: 58.2 263 07 084

Yugoslavia

Yugoslavia Muscular Dystrophy Association
Savez Distroficara Jugoslavije, Marksima Gordog 28a, 11000  BEOGRAD
Phone: 381.11 668 599 - Fax: 381.11 439 854

Zimbabwe
Muscular Dystrophy Association of Zimbabwe
3rd Avenue / George Silundika Street, PO Box 3468, BULAWAYO
Phone: 263.09 727 40 - Fax: 263.09 727 40
E-mail: mdaz@acacia.samara.co.zw


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