Miscarriage, stillbirth, infant death

Miscarriage, Stillbirth, Infant Death and Pregnancy Complications

(neonatal death, parents, siblings, miscarriage, stillbirth, twins, prematurity, sudden infant death syndrome, infertility, chromosome information, genetic resources)

Compassionate Friends bereaved parents and siblings P.O. Box 3696, Oak Brook, IL 60522-3696 Phone: (630) 990-0010 Fax: (630) 990-0246 E-mail: nationaloffice@compassionatefriends.org Web Site: www.compassionatefriends.org/ Stillbirth, Miscarriage and Infant Death brochure, Compassionate Friends
A.M.E.N.D. (Aiding a Mother and Father Experiencing Neonatal Death): 1559 Ville Rosa, Hazelwood, MO 63042, Phone: (314) 291-0892

Helping After Neonatal Death (HAND)

SPALS (Subsequent Pregnancy After a Loss Support) For families who have experienced the loss of a child who are currently pregnant or are considering another pregnancy

InterNational Council on Infertility Information Dissemination

P.O. Box 6836, Arlington, VA 22206

Phone: (520) 544-9548 Fax: (703) 379-1593, E-mail: iidinfo@inciid.org

Web Site: www.inciid.org

Infertility and Pregnancy Loss INCIID Links and Online Resources

M.E.N.D. (Mommies Enduring Neonatal Death)

P.O. Box 1007, Coppell, TX 75019

Phone: 1-800-695-MEND Toll free: (888) 695-MEND

E-mail: rebekah@mend.org

Web site: www.mend.org/

Internet Resources, bimonthly newsletter, support groups: 1) for those who have recently lost a baby to miscarriage, stillbirth, and infant death, 2) pregnancy group for those who are considering becoming pregnant or are currently pregnant after a loss, 3) father group

Miss Foundation, beavement support for child death

P.O. Box 5333, Peoria, Arizona 85385 Phone: 623.979.1000, Fax 623.979.1001

Just For Kids!

What Color is Death, Daddy?, interactive book for children ages 3-7

The Kaleidoscope of Grief: When Children Experience Death, interactive book for Children ages 7 and up

Kaleidoscope book En Español

A Place to Remember (Infant Loss Support Groups and Literature, Genetics and Special Groups, Adoption, Infertility, High Risk Pregnancy / Premature Infants, Twins and Multiples, General Grief Resources, Magazines and Newsletters)

Pen-Parents, Inc. International support network, matches bereaved parents: PO Box 8738, Reno, NV 89507-8738; E-mail: Rvlz03f@prodigy.com

Pregnancy and Infant Loss Network, SIDS Network: 1421 East Wayzata Boulevard, Suite #30, Wayzata, Minnesota 55391; Phone: (612) 473-9372; Fax: (612) 473-8978

SHARE Pregnancy and Infant Loss Support, Inc.: Support for those touched by the death of a baby through miscarriage, stillbirth, or newborn death; St. Joseph’s Health Center, 300 First Capitol Dr., St. Charles, MO 63301-2893; Phone: (800) 821-6
: 819 or (314) 947-6164; Fax: (314)947-7486; Web site: www.NationalSHAREOffice.com/

SIDS Western Australia. (Stillbirth, miscarriage and Neonatal Death Support)

SANDS Inc. Western Australia (Stillbirth, miscarriage and Neonatal Death Support) Phone: 1-800/686780 or 09 382.2687 (local) or 619 382 2687 (International)

Miscarriage

Dealing With the Emotional Aspects of Miscarriage, RESOLVE
Miscarriage Support & Information Resources, Fertility Plus
For Those Who Have Had Miscarriages, ivf.com, CECarney, mother who lost a child to neonatal death, grieving process

Stillbirth

Wisconsin Still Birth Service Program, includes Evaluation Protocol, Stillbirth and related resources, Genetics Department, University of Wisconsin

Pregnancy and Complications

Hygeia (TM) - online journal for pregnancy and neonatal loss, MR Berman, M.D., New Haven, CN
Complications of Pregnancy, childbirth.org, Pregnancy loss and other related information
New York Online Access to Health: Pregnancy
OBGYN.net, women's health information

Factor V Leiden (thrombophilia)

Factor V Leiden (thrombophilia) Activated Protein C and Activated Protein S Support Page and Mailing List
Factor V Leiden profile, GeneClinics, University of Washington
ncreased frequency of genetic thrombophilia in women with complications of pregnancy, Journal Article, NEJM vol 340, pg 9-13, Jan 7, 1999 [correction]

Twins and Multiple Births

CLIMB (Center for Loss in Multiple Birth)
Twinless Twins, Support for twins who suffer from the loss of companionship of their twins through death, estrangement, or in utero loss
Twins and Multiple Births, including loss of one twin

Sudden Infant Death Syndrome

Sudden Infant Death Syndrome (National Office) 1314 Bedford Avenue, Suite 210 Baltimore, Maryland 21208 Phone: (410) 653-8826 / (800) 221-SIDS Fax: (410) 659-8709
Pregnancy and Infant Loss Network, An extension of the SIDS Network, Inc. Web site: sids-network.org/pil.htm
Sudden Infant Death Syndrome (SIDS) 9 Gonch Farm Road Ledyard, Connecticut 06339 e-mail: sidsnet@q.continuum.net
Unite, Inc. 7600 Central Avenue Philadelphia, PA 19111-2499 Phone: (215) 728-3777 contact: Janis Heil, Executive Director
Canadian Foundation for the Study of Infant Deaths, 586 Eglinton Avenue East, Suite 308 Toronto, Ontario, Canada M4P 1P2 Phone: (416) 488-3260 or Toll-free: 1-800-END-SIDS Fax: (416) 488-3864 e-mail: sidscanada@inforamp.net

Infertility

Infertility Information and Resources

Chromosome Information

Chromosomal Conditions Information and Resources

Also See:

Support groups for those who continue a pregnancy with an abnormality
National organizations with information on genetic conditions or birth defects
SPALS (Subsequent Pregnancy After a Loss Support) mailing list
Grief Related To Pregnancy And Infant Death, Growth House, Inc.
Centering Corporation, bereavement literuature for parents, Children and Grief, Infant Loss Resources, Death of a Child, General Grief Resources, some materials in Spanish
Now I Lay Me Down to Sleep, a network of professional photographers who volunteer their time and services to parents who are having or have had babies who are stillborn or not expected to live very long in order to make a photographic record of these babies' short lives for their families. New 2007

Stillbirth Evaluation Protocol, Genetics Department, University of Wisconsin

Brain and Tissue Banks for Developmental Disorders 1-800-847-1539 (in contract with The National Institutes of Child Health and Human Development) Accepts donations of organs and tissues from babies, children, fetuses, etc. who have died from chromosome disorders, encephalopathies, amnioacidopathies, leukodystrophies, lysosomal disorders, neurological disorders, SIDS, unexplained MR, autism, etc. The tissue is utilized in research

To delete a name from baby product mailing / phone list(s), send request in writing to:

Mailing lists: Direct Marketing Association, Mail Preference Service, PO Box 9008, Farmingdale, NY 11735-9008

Phone Lists: Direct Marketing Association, Phone Preference Service, PO Box 9014, Farmingdale, NY 11735-9008

Additional information: (212) 768-7277

Genetic counselors and clinical geneticists:

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