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Miscarriage, Stillbirth, Infant Death and Pregnancy Complications

(neonatal death, parents, siblings, miscarriage, stillbirth, twins, prematurity, sudden infant death syndrome, infertility, chromosome information, genetic resources)


Compassionate Friends bereaved parents and siblings
P.O. Box 3696, Oak Brook, IL 60522-3696
Phone: (630) 990-0010
Fax: (630) 990-0246
E-mail: nationaloffice@compassionatefriends.org
Web Site:  www.compassionatefriends.org/
Stillbirth, Miscarriage and Infant Death brochure, Compassionate Friends
 
A.M.E.N.D. (Aiding a Mother and Father Experiencing Neonatal Death)
1559 Ville Rosa, Hazelwood, MO 63042, Phone: (314) 291-0892

Helping After Neonatal Death (HAND)

SPALS (Subsequent Pregnancy After a Loss Support) For families who have experienced the loss of a child who are currently pregnant or are considering another pregnancy

InterNational Council on Infertility Information Dissemination

P.O. Box 6836, Arlington, VA 22206
Phone: (520) 544-9548 Fax: (703) 379-1593, E-mail: iidinfo@inciid.org
Web Site: www.inciid.org
Infertility and Pregnancy Loss INCIID Links and Online Resources

M.E.N.D. (Mommies Enduring Neonatal Death)

P.O. Box 1007, Coppell, TX 75019
Phone: 1-800-695-MEND Toll free: (888) 695-MEND
E-mail: rebekah@mend.org
Web site: www.mend.org/
Internet Resources, bimonthly newsletter, support groups: 1) for those who have recently lost a baby to miscarriage, stillbirth, and infant death, 2) pregnancy group for those who are considering becoming pregnant or are currently pregnant after a loss, 3) father group

Miss Foundation, beavement support for child death
P.O. Box 5333, Peoria, Arizona 85385 Phone: 623.979.1000, Fax 623.979.1001
Just For Kids!
  • What Color is Death, Daddy?, interactive book for children ages 3-7
  • The Kaleidoscope of Grief: When Children Experience Death, interactive book for Children ages 7 and up
  • Kaleidoscope book En Español
  • A Place to Remember (Infant Loss Support Groups and Literature, Genetics and Special Groups, Adoption, Infertility, High Risk Pregnancy / Premature Infants, Twins and Multiples, General Grief Resources, Magazines and Newsletters)
    Pen-Parents, Inc. International support network, matches bereaved parents
    PO Box 8738, Reno, NV 89507-8738
    E-mail: Rvlz03f@prodigy.com
    Pregnancy and Infant Loss Network, SIDS Network
    1421 East Wayzata Boulevard, Suite #30, Wayzata, Minnesota 55391
    Phone: (612) 473-9372
    Fax: (612) 473-8978
    SHARE Pregnancy and Infant Loss Support, Inc.
    Support for those touched by the death of a baby through miscarriage, stillbirth, or newborn death
    St. Joseph’s Health Center, 300 First Capitol Dr., St. Charles, MO 63301-2893
    Phone: (800) 821-6
     
    819 or (314) 947-6164
    Fax: (314)947-7486
    Web site: www.NationalSHAREOffice.com/
    SIDS Western Australia. (Stillbirth, miscarriage and Neonatal Death Support)
    SANDS Inc. Western Australia (Stillbirth, miscarriage and Neonatal Death Support)
    Phone: 1-800/686780 or 09 382.2687 (local) or 619 382 2687 (International)

    Miscarriage
    Stillbirth
    Pregnancy and Complications

    Factor V Leiden (thrombophilia)

    Twins and Multiple Births
    Sudden Infant Death Syndrome
    Infertility
    Chromosome Information

    Also See:


    Stillbirth Evaluation Protocol, Genetics Department, University of Wisconsin

    Brain and Tissue Banks for Developmental Disorders 1-800-847-1539 (in contract with The National Institutes of Child Health and Human Development) Accepts donations of organs and tissues from babies, children, fetuses, etc. who have died from chromosome disorders, encephalopathies, amnioacidopathies, leukodystrophies, lysosomal disorders, neurological disorders, SIDS, unexplained MR, autism, etc. The tissue is utilized in research

    To delete a name from baby product mailing / phone list(s), send request in writing to:
  • Mailing lists:  Direct Marketing Association, Mail Preference Service, PO Box 9008, Farmingdale, NY  11735-9008
  • Phone Lists:  Direct Marketing Association, Phone Preference Service, PO Box 9014, Farmingdale, NY  11735-9008
  • Additional information:  (212) 768-7277

  • Genetic counselors and clinical geneticists:
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    Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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    Genetics Education Center
    University of Kansas Medical Center © 1995-2012
    Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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