Liver Conditions

(Biliary Atresia, Alagille Syndrome, Alpha-1 Antitrypsin, Tyrosinemia, Neonatal Hepatitis, Wilson Disease)

American Liver Foundation

Web Page: http://www.liverfoundation.org/

Liver Health, conditions, pamphlets, American Liver Foundation

United Liver Association

11646 West Pico Boulevard

Los Angeles, CA 90064-2987

Phone: (310) 445-4204

Fax: (310) 575-3871

 

Children’s Liver Alliance, Australia

23 Dirkala Street

Mansfield Qld 4122, Australia

Phone/Fax: +61 7 3219 2864

Email: cla@liverkids.org.au

Web site:  http://www.liverkids.org.au/

Tyrosinemia

• Hereditary tyrosinemia, American Liver Foundation
• Hereditary tyrosinemia, Children's Liver Alliance
• Tyrosinemia Information, community group on MSN
• Overview of tyrosinemia, MeadJohnson
• Overview of tyrosinemia, emedicine
• Tyrosinemia, MARodriguez Lanza, in Spanish

Crigler-Najjar Syndrome

• Crigler-Najjar syndrome, Medical Encyclopedia
• Crigler-Najjar Association, King’s Way Foundation, Wichita, KS, includes Links to Resources
• Crigler-Najjar Syndrome, Online Mendelian Inheritance in Man (OMIM) #218800
• Crigler Najjar Syndrome, links to resources, web page from Italy (in English)

Also See:

• National organizations - information on genetic conditions/birth defects
• Special Diet for low protein food (tyrosinemia, PKU, other)
• PKU
(Phenylketonuria)
• Alagille Syndrome Alliance
• Alpha 1-Antitrypsin Deficiency Syndrome
• American Hemochromatosis Society, Inc.
• Biliary Atresia & Liver Transplant Network
• British Liver Trust
• Canadian Liver Foundation
• Children’s Liver Disease Foundation
• Children's Liver Association for Support Services
• Children’s Organ Transplant Association
Hemochromatosis
• Hemochromatosis Foundation
• Iron Overload Diseases Association, Inc. (Hemochromatosis)
• Wilson’s Disease Association

To locate a genetic counselor or geneticist in your area:

• Professional Genetics Societies
• Genetic clinics, centers, departments

Revised January 23, 2009

   

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Genetics Education Center
University of Kansas Medical Center © 1995-2009
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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