Limb anomalies

Missing arm(s) or leg(s), Poland anomaly, Proximal Femoral Focal Deficiency, Holt Oram Syndrome, ectrodactyly, Proteus Syndrome, Sturge Weber Syndrome, Epidermolysis Bullosa, Nail Patella Syndrome, VATER Association, Arthrogryposis (amyoplasia), Cornelia de Lange Syndrome, other

Superkids: 60 Clyde Street; Newton, MA 02460-2250; Phone: 1-888-467-8481; Contact: Peter McLoughlin; Web site: http://www.super-kids.org/

Cherub, Inc. (Association of Families and Friends of Children with Limb Disorders): Children's Hospital of Buffalo; 936 Delaware Ave; Buffalo, NY 14209; Phone: (716) 762-9997 or (716) 878-1050; Contact: Sandra Richenberg or Kathy Gura

Proximal Femoral Focal Deficiency: Virtual Support Group, Ohio; Contact: Mike and Cindy Malloy; E-mail: pffdvsg@ohio.net; Web site: http://www.ohio.net/~pffdvsg/
REACH (Association for Children with Hand or Arm Deficiency): 12 Wilson Way; Earl's Barton, Northamptonshire; United Kingdom, NN6 9NZ; Fax/Tel: 01604 811041

Holt Oram Syndrome Support Group

21 Forth Road, Redcar

Cleveland, TS10 1PN, United Kingdom
Phone: 01624 485379

Other Resources:

I Can / Bill and Joyce Baughn's page
The I-CAN listserv - a forum for discussion and support for parents of children with limb differences. To subscribe, send the message SUBSCRIBE I_CAN to Maiser@hoffman.mgen.pit.edu/
Child Amputee Page, includes links for parents
Amputee Coalition of America (888) 267-5669, information, resources, options

In Motion Magazine
Amputation: The Online Magazine for Amputees
International Paralympic Committee
Amputee Soccer

Families with Amputee Children
P.O. Box 91834
Longbeach, CA 90804
(213) 828-4009

Single Shoes and Gloves:

Amputee Shoe and Glove Exchange; 1635 Harwickshire Drive; Houston, TX 77077
: National Odd Shoe Exchange; 7102 N. 35th Ave., Suite 2; Phoenix, AZ 85051; (602) 841-6691; One Shoe Crew; 86 Clavela Avenue; Sacramento, CA 95828-4647; (916) 364-7463

Keyboard for single-handed typists - Dvorak keyboard, PC and Mac computers

Configure Win95 [Control Panel, then Keyboard, then Languages, then Properties]
Mac software free at http://shareware.cnet.com/

Voice Recognition Software Programs - computer recognizes & transcribes spoken words

Dragon Naturally Speaking, Dragon (800) 437-2466

Via Voice, IBM (800) 825-5263

Voice Express, Lernout and Hauspie (800) 380-1234

Videotape: Life of Bonnie Consolo:

Women and Disabilities http://www.loc.gov/nls/reference/av.html#cystic Video, University of Minnesota, Day in the life of Bonnie Consolo. 1975. 16 minutes. Rental $16
Bonnie Consolo, who was born without arms, narrates her own story as the camera follows her through her daily routine. Spinello, Barry; Barr Films; 1975 http://henry.ugl.lib.umich.edu/libhome/FVL.lib/filmogs/disabilities.html
Bonnie Consolo (Revisited), award winning film describes how Bonnie Consolo, a woman born with no arms, lives a full and productive life. The video depicts her daily routine. The viewer sees her doing common activities with her feet. Comments from her family and co-workers express their method of dealing with their feelings about her condition, Visual Education Centre Ltd., 7218 Progress Way, Ladner, BC, V4G 1H2 http://schoolfile.com/mentalhealthresources.htm
Bonnie Consolo, 87 Film Color 23 min. 5184 Video Color 23 min., sequel to A Day in the Life of Bonnie Consolo, offers a more introspective and intimate portrait of a remarkable woman. Bonnie Consolo has maintained a full life despite having been born without arms. Barr Films, 1987

Book:

Caseley, Judith, Harry and Willy and Carrothead, Greenwillow, 1991, Children's book, Harry was born with no left hand and wears a prosthesis. His hand didn't keep him from being a good baseball player - or a good friend.

Also See:

National organizations information on genetic conditions or birth defects
Hand Surgery Information, St. James's University Hospital, Leeds, United Kingdom

To locate a genetic counselor or clinical geneticist in your area:

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