- Langer-Giedion Syndrome
- (also Trichorhinophalangeal Syndrome, Type II or Type I)
Langer-Giedion
Syndrome
- Langer-Giedion Syndrome Association
- 89 Ingham Ave.
- Toronto, ON
- M4K 2W8 Canada
- 416-465-3029
- e-mail: kinross@istar.ca
- Langer-Giedion Syndrome (also known as
Trichorhinophalangeal Syndrome, Type II) is a multi-system disorder involving the deletion
of at least two genes on the long arm of chromosome 8 (8q24.11). In 1997, this
international organization founded for people affected by LGS and Trichorhinophalangeal
Syndrome, Type I (a milder condition). Includes over 30 families from around the world
affected by LGS, and more than 10 affected by TRPSI.
-
- Langer-Gideon Syndrome Association - TRPS (all types)
- c/o Raquel Rozenberg
- 11695 Boulton Ave.
- San Diego, CA 92128
- E-mail: lgsa@geocities.com
Langer Giedion Syndrome,
Wells Lab
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