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Langer-Giedion Syndrome
(also Trichorhinophalangeal Syndrome, Type II or Type I)

Langer-Giedion Syndrome

Langer-Giedion Syndrome Association
89 Ingham Ave.
Toronto, ON
M4K 2W8 Canada
416-465-3029
e-mail: kinross@istar.ca
Langer-Giedion Syndrome (also known as Trichorhinophalangeal Syndrome, Type II) is a multi-system disorder involving the deletion of at least two genes on the long arm of chromosome 8 (8q24.11). In 1997, this international organization founded for people affected by LGS and Trichorhinophalangeal Syndrome, Type I (a milder condition). Includes over 30 families from around the world affected by LGS, and more than 10 affected by TRPSI.
 
Langer-Gideon Syndrome Association - TRPS (all types)
c/o Raquel Rozenberg
11695 Boulton Ave.
San Diego, CA 92128
E-mail: lgsa@geocities.com

Langer Giedion Syndrome,   Wells Lab

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Genetics Education Center
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Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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