Klinefelter syndrome
- Klinefelter Syndrome
& Associates, Inc.
- PO Box 119
- Roseville, CA 95678-0119
- Phone: 916.773.1449
- Fax: 916.773.1449
- E-mail: help@genetic.org
- Web site: http://www.genetic.org/ks/
(Japenese
version)
- [Note: group name may change to X &
Y Family Genetic Network and include XXX, and XXY and the multiple sex chromosome
variants]
- - Resources
for families
- - Introductory
video about XXY, by mother whose son has Klinefelter Syndrome
- - The Even Exchange, Newsletter
- American
Association for Klinefelter Syndrome Information and Support
(AAKSIS)
Klinefelter
Syndrome Support Group Home Page, numerous links
to other organizations and resources, created by an adult with Klinefelter Syndrome,
regional groups, varients, international groups
International Groups:
- Australia
-
- Australian Klinefelter Support Group
- 4 Victoria Rd
- Acquire Fields NEW 02564 AUSTRALIA
- 02-605-2837
-
- Victoria Support Group
- 41 Jesmond Rd
Cordon, Victoria 03136 AUSTRALIA
03-9723-6148
Klinefelter Syndrome Support Group- P.O.Box 3
Glendenning Mail Center NEW 2761 AUSTRALIA
02-9628-4142
Canada
- Canada Klinefelter Support Group
- Apt. 3, 2867 Young St.
Toronto, ON. Canada M4N 2J5
416. 481.3171
England (United
Kingdom)
- Klinefelter's
Syndrome Association
- 56 Little Yeldham
Road
- Little Yeldham, Halstead,
Essex CO9 4QT
-
- Klinefelter
Organisation [formerly the Klinefelter's Syndrome Club
UK (KSCUK)]
-
- Belgium
Belgische
vereniging voor het syndroom van Klinefelter
Sweden and Denmark
- Swedish
Klinefelter Association (Svenska XXY& Klinefelterföreningen)
Klinefelter Syndrome
Booklets, Danish version or English version, The Turner Center
Norwegian
Klinefelter Site
Other information:
- Chromosomal
Problems Discovered through Prenatal Diagnosis: Klinefelter Syndrome,
(.pdf) PacNorGG spanish
version
- Diagnosis
and Treatment of Klinefelter Syndrome,
CM SMYTH, University of Washington, Hospital Practice, 1999
- Guide
for XXY Males and Their Families,
R Bock, National Institute of Child Health & Human Development (NICHD),
National Institutes of Health (NIH)
- Klinefelter Syndrome
(47,XXY), English & Spanish
(.pdf files),
Pacific
Northwest Regional Genetics Group (PacNoRGG)
- Klinefelter
Syndrome (XXY): A Parent's View
- Klinefelter
Syndrome, eMedicine
-
Klinefelter Syndrome,
Ohio Support Network
- Misleading information
in early Klinefelter studies
- Human Growth Foundation
- Teaching
tips for males with XXY
- The Turner
Center Center for Information,Counseling, and Research on chromosome anomalies
(includes Klinefelter Syndrome: An
Orientation and Klinefelter
Syndrome: Brief Information)
- Understanding
Klinefelter Syndrome: A Guide for XXY Males and their Families, R
Boca, INCHED, NIHAU Pub. No. 93-3202, August 1993
- XXY List
Members
- What
is XXY? Hambley, (french
version) XYY individual's
sites
- Klinefelter’s Syndrome pamphlet and
The X-tra Special Boy and For Boys Only, A Supplement pamphlets,
by D Plumridge,C Brackets, and S LaFranchi, $3.50 for the main pamphlet and
$1.25 for the supplement. Attn: CDRC Publications, Oregon Health Sciences
University, CDRC, P.O. Box 574, Portland, Oregon 97207, Phone: (503) 279-8342
- checks to: Child Development & Rehabilitation Center.
Also See:
- National
organizations resources on genetic conditions or birth defects
- Information
about Gynecomastia
- XXYY
Home Page
- Diagnosis
of Klinefelter's syndrome, Human Genetics Problem Set,
the Biology Project, karyotype
- Infertility
Resources
- Klinefelter
Syndrome,
Genetic Assignment
- Klinefelter
Syndrome - An XXY Legacy
- Other Chromosomal Conditions
Information
- Pinsky, L, RP Erickson, and
RN Schimke, Genetic
Disorders of Human Sexual Development, Oxford University
Press, 1999. ISBN
0-19-510907-4
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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu
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