Genetic
Conditions/ Rare Conditions
Support Groups & Information
Languages
other than English
Medical
Genetics, University of Kansas Medical Center
Note: Many
genetic support groups continue to add versions of their resources in multiple
languages. See individual support groups for updated information and other international sites
or search this web site for condition and language [use,
for example: "Down Syndrome" and spanish]. Also, see Spanish
Genetic Resources.
Genetic Conditions
- March
of Dimes Resource Center - education materials,
genetic condition fact sheets, pre-pregnancy information. Materials in English
and Spanish
- New York Online Access to Health
(NOAH), includes spanish
language genetic links
- Genetic Resources:
GeneHELP (510)-540-2972 - a database and collection of patient education materials, a
service of the Genetic Disease Branch, California State Department of Health
Services, with a interest in materials serving diverse ethnocultural groups.
- Resources in Spanish:
Parents Helping Parents, California (408)-727-5775
- Diversity
Resources
- Spanish
Health Information, Healthfinder
Craneosinóstosis
(spanish), WEBPed
Down
Syndrome
- Down
Syndrome Research Foundation & Resource Centre, Vancouver, BC, Canada,
e-mail: dsrf@sfu.ca, links
to Down Syndrome materials in Danish, French,
Italian, Japanese, Korean, Portuguese, Swedish, Spanish, Turkish, other
- Welcoming
Babies with Down Syndrome, English, Spanish, French,
and Chinese,Swedish
- Treating
People with Down Syndrome, English and Spanish, Dr.
Trumble
- Welcome
to Holland by Emily Perl Kingsley, also available in Spanish and Chinese
Trisomy 18 and
13
- Trisomy
18 and 13, SOFT, literature in Spanish, including
pamphlet, "Common Problems of Babies with Trisomy 18 or 13"
and natural history of T-18 and T-13
Leukodystrophy
Translation
Sites
Babylon
translation program, free download 1999, English to Spanish, German,
Portuguese, French, Italian, Dutch, Japanese, Hebrew, Chinese)
Free
Translation (English, French, German, Italian,
Norwegian, Portuguese, Spanish), text or web page
Translation
service, AltaVista, Babelfish (Spanish, French, Italian,
Portuguese, German, English)
Human
Languages Page - dictionaries, translation
programs, cultural resources for Spanish, German, French, Russian, Vietnamese,
sign language, other
Your
Dictionary.com, including Multilingual Dictionaries,
Specialized English Dictionaries, Thesauri, Vocabulary Aids, Language Identifiers
and Guessers, Grammars
To locate a genetic counselor
or clinical geneticist in your area:
Also See:
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| Clinical Resources
|
Labs
| Clinics
|
Genetics Education
| Careers
|
Cytogenetics
| Genome Centers
|
Genetic Computer Resources
|
Professional Education
| Diversity |
Advocacy
| Glossaries |
Advisors
| Software
|
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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu
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