
Ichthyosis
- Foundation for Ichthyosis and Related
Skin Types, Inc. (F.I.R.S.T.)
- 650 N. Cannon Ave., Suite 17
- Lansdale, PA 19446
- Phone: 215-631-1411
- Fax: 215-631-1413
- E-mail: info@scalyskin.org
- Web Site: www.scalyskin.org
- Includes Types of
Ichthyosis
-
- National Registry for
Ichthyosis and Related Disorders
- (including erythrokeratodermas, Darier disease, Hailey-Hailey disease,
palmar-plantar keratodermas, pachyonychia congenita, extensive epidermal nevi, inherited
ichthyoses)
- University of Washington
- Dermatology, Room BB1353, Box 356524
- Seattle, WA 98195-6524
Web site:http://depts.washington.edu/ichreg/ichthyosis.registry/
- Phone: 800.595.1265 or 206.616.3179
- E-mail: ichreg@u.washington.edu
- National Institute of Arthritis and Musculoskeletal and Skin Diseases
- Information Clearinghouse National Institutes of Health
- 1 AMS Circle
- Bethesda, Maryland 20892-3675 U.S.A.
- Phone: 301.495.4484, TTY: 301.565.2966
- Fax: 301.718.6366
- Web Site http://www.nih.gov/niams/
-
- American Academy of Dermatology
- 930 N. Meacham Road
- Schaumburg, IL 60173
- Phone 847.330.0230 or 888.462.DERM
- Web Site http://www.aad.org/
Also See:
To locate a genetic counselor or clinical geneticist:
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Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu
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