Ichthyosis

Foundation for Ichthyosis and Related Skin Types, Inc. (F.I.R.S.T.): 650 N. Cannon Ave., Suite 17; Lansdale, PA 19446; Phone: 215-631-1411; Fax: 215-631-1413; E-mail: info@scalyskin.org; Web Site: www.scalyskin.org

Includes Types of Ichthyosis

National Registry for Ichthyosis and Related Disorders: (including erythrokeratodermas, Darier disease, Hailey-Hailey disease, palmar-plantar keratodermas, pachyonychia congenita, extensive epidermal nevi, inherited ichthyoses); University of Washington; Dermatology, Room BB1353, Box 356524; Seattle, WA 98195-6524
Web site:http://depts.washington.edu/ichreg/ichthyosis.registry/; Phone: 800.595.1265 or 206.616.3179; E-mail: ichreg@u.washington.edu

National Institute of Arthritis and Musculoskeletal and Skin Diseases: Information Clearinghouse National Institutes of Health; 1 AMS Circle; Bethesda, Maryland 20892-3675 U.S.A.; Phone: 301.495.4484, TTY: 301.565.2966; Fax: 301.718.6366; Web Site http://www.nih.gov/niams/

American Academy of Dermatology: 930 N. Meacham Road; Schaumburg, IL 60173; Phone 847.330.0230 or 888.462.DERM; Web Site http://www.aad.org/

Also See:

National organizations information on genetic conditions or birth defects

To locate a genetic counselor or clinical geneticist:

Professional Genetics Societies

Genetic clinics, centers, departments

Revised January 23, 2009

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