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Foundation for Ichthyosis and Related Skin Types, Inc. (F.I.R.S.T.)
650 N. Cannon Ave., Suite 17
Lansdale, PA 19446
Phone: 215-631-1411
Fax: 215-631-1413
Web Site:
Includes Types of Ichthyosis
National Registry for Ichthyosis and Related Disorders
(including erythrokeratodermas, Darier disease, Hailey-Hailey disease, palmar-plantar keratodermas, pachyonychia congenita, extensive epidermal nevi, inherited ichthyoses)
University of Washington
Dermatology, Room BB1353, Box 356524
Seattle, WA 98195-6524
Web site:
Phone:  800.595.1265 or 206.616.3179
National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse National Institutes of Health
1 AMS Circle
Bethesda, Maryland 20892-3675 U.S.A.
Phone: 301.495.4484, TTY: 301.565.2966
Fax: 301.718.6366
Web Site
American Academy of Dermatology
930 N. Meacham Road
Schaumburg, IL 60173
Phone 847.330.0230 or 888.462.DERM
Web Site

Also See:

To locate a genetic counselor or clinical geneticist:

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Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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