Huntington Disease

11400 West Olympic Boulevard, Suite 855
Los Angeles, CA 90064-1560 USA
Phone: 310. 575.9656
Fax: 310.575.9156
E-mail: cures@hdfoundation.org

Web site: www.hdfoundation.org/

158 West 29th Street, 7th Floor
New York, New York 10001-5300
Phone: 212. 242.1968 or 800.345.HDSA [4372]

Fax: 212. 239.3430

E-mail: hdsainfo@hdsa.org

Web site: www.hdsa.org/

International Groups

Huntington Disease, GeneClinics
Basics of Huntington Disease, Questions Index, HOPES
Caring for People with Huntington's Disease, MDubinsky, University of Kansas Medical Center Neurology Clinic
Electronic Resources on Huntington Disease, RDavis, librarian, Univ. Chicago
canadaHuntington Disease (HD), Western Pennsylvania HD Chapter
Huntington Disease, Johns Hopkins
Huntington Disease, Your Genes, Your Health module, DNA Learning Center New
Huntington Disease and Information Page, National Institute of Neurological Disorders & Stroke
Huntington Disease Clinical Synopsis, OMIM (Online Mendelian Inheritance in Man)
Huntington Disease Genetic Testing Centers, USA
Huntington Disease, National Center for Biotechnology Information (NCBI), Genes and Disease
Huntington Study Group (HSG), clinical research, physicians and health care providers from U.S., Canada, Europe and Australia New
Huntington's and Me - A Guide for Young People, Talking to Children about Huntington Disease, (.pdf) United Kingdom New
Information on Huntington Disease, Baylor College of Medicine Clinic, Houston, TX
Testing for Huntington Disease: Making an Informed Choice (pdf file format), Genetic Testing for Neurological Conditions, Medical Genetics and Neurology, University of Washington, Seattle, WA, USA
Testing for Huntington Disease: Making an Informed Choice, (.pdf) University of Washington

National organizations information on genetic conditions or birth defects
Non-Chew Cook Book
Laboratory guidelines for Huntington disease genetic testing, American College of Medical Genetics/American Society of Human Genetics Huntington Disease Genetic Testing Working Group, Am J Hum Genet 1998 May;62(5):1243-7
Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents, American Society of Human Genetics/American College of Medical Genetics
WeMove: Worldwide Education and Awareness for Movement Disorders, Mount Sinai Medical Center, NY, NY

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