Hirschsprung anomaly

Hirschsprung Anomaly

(congenital aganglionic megacolon, also pseudo-obstruction and other motility problems)

American Pseudo-obstruction and Hirschsprung’s Disease Society, Inc. (APHS): 158 Pleasant Street; North Andover, MA 01845-2797; Phone: 508-685-4477; Fax: 508-685-4488; E-mail: aphs@mail.tiac.net; Web site: not active Sept 2002

Guardian Society, Hirschsprung's disease, gastrointestinal relfux, and other motility disorders: Web site: theguardiansociety.org

Also See:

National organizations information on genetic conditions or birth defects
American Hirschsprung Disease Association, web page not active Sept 2002, former address 22 1/2 Spruce Street, Brattleboro, VT 05301, 802.257.0603
Australian Council of Stoma Associations (ACSA)
Digestive Disease National Coalition
Directory of Digestive Disease Organizations, National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Hirschsprung Disease (Colonic Agangliosis), Children's Virtual Hospital
Ileostomy and Internal Pouch Support Group, UK
International Ostomy Association
North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition
Pull-thru Network for kids with imperforate anus, cloaca, VATER association, urinary incontinence, United Ostomy Association, Inc.
Shadow Buddies
United Ostomy Association
United Ostomy Association of Canada
What I Need to Know about Hirschprung's Diesease, National Digestive Diseases Information Clearinghouse (NDDIC)

To locate a genetic counselor or clinical geneticist in your area:

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