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Hermansky-Pudlak syndrome

Hermansky-Pudlak Syndrome Network
One South Road
Oyster Bay, New York 11771-1905
Phone:  1.800.789.9477
Web site:
E-mail :
The National Organization for Albinism and Hypopigmentation
1530 Locust Street, #29
Philadelphia, PA 19102-4415
Phone: 215-545-2322 or 800-473-2310

Also See:

To locate a genetic counselor or clinical geneticist in your area:

Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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