Hard of Hearing / Deafness

John Tracy Clinic

Los Angeles, CA, Phone: 213.748.5481, or 800.522.4582

Web site: www.jtc.org

Genetics and Deafness / Hearing Loss Resources:

• Genetics and Deafness: Basic Concepts, Genetic Syndromes, Individual Perspectives, Boys and Girls Town National Research Hospital, Omaha, NE
• Connexin-deafness homepage, RK Rabionet
• Communication Disorders: Special Populations: Craniofacial Syndromes, JH Jung, 2002
• Genetics and Communication Disorders: What Communication Clinicians and Scientists Need to Know, RJ Shprintzen
• Genetics and Deafness, Boystown, Omaha, NE
• Genetics Evaluation Guidelines for the Etiologic Diagnosis of Congenital Hearing Loss. American College of Medical Genetics (ACMG) Statement, Genetics in Medicine, Vol 4, No. 3, May/June 2002 New
• Hearing and Disease, NCBI, Genes and disease, connexin 26 (Cx26) gene
• Hereditary Hearing Loss and its Syndromes, RJ Gorlin, HV Toriello, and MM Cohen.
• Hereditary Hearing Loss, University of Iowa
• Hereditary Hearing Loss and Deafness Overview, GeneClinics
• Principles and Guidelines for Early Hearing Detection and Intervention Programs, Position Statement, Joint Committee on Infant Hearing, 2000 Boys Town National Research Hospital
• Nonsyndromic Hearing Loss and Deafness, DFNB1 (Connexin 26), GeneClinics
• Student with a Genetic Disorder: Educational Implications for Special Education Teachers, Physical Therapist, Occupational Therapists, and Speech Pathologists, by DPlumridge, RBennett, NDinno, CBranson (ISBN 0-398-05839-3) 1993
• Ten Syndromes Most Commonly Associated With Hearing Impairment, genetic concepts /conditions, Boystown, Omaha, NE
• Usher Syndrome Resources
• Waardenberg Syndrome Resources
  

Also See:

• National organizations information on genetic conditions or birth defects
• Deaf Education Kent State University
• HandSpeak: A Sign Language Dictionary
• Deaf/ Blind Links, family site
• Morton Hearing Loss Page, Brigham & Women’s Hospital, Harvard Medical School
• Promenade 'Round the Cochlea, Université Montpellier
• What Causes Hearing Loss in Babies and Children?, March of Dimes Fact Sheet

• Miss America 1995 Picture: Heather Whitestone. Autographed picture, send stamped self-address envelope, and request for a picture to: Miss America Organization, PO Box 119, Atlantic City, NJ 08404
• Listening With My Heart, Heather Whitestone, Angela Elwell Hunt, Doubleday; ISBN: 0385488998, July 1998
• Advocacy Resources (Americans with Disabilities Act, People First Language, Etiquette, Accessibility to Internet, Translation Programs, Fedderal Advocacy, Other)

To locate a genetic counselor or clinical geneticist in your area:

• Professional Genetics Societies
• Genetic clinics, centers, departments

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu

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