Organizations for Support Groups & Information

Genetic / Rare Conditions

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Information for professionals, educators, or individuals through:

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A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | R | S | T | U | V | W | X
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United States / English language resources, some with international links (Canada, United Kingdom, Australia)

[See also International Organizations, International Languages Translantion Sites, Spanish genetic sites]

Genetic Focus or Health Focus including medical genetics


Specific categories / conditions


Individual to individual support - numerous conditions


International resources (support groups, lay advocacy groups, languages other than English) Spanish Resources

Australia

Belgium

Canada

Denmark

Finland flag Finland

France

Germany

Italy

Israel

Luxembourg

Netherlands

Norway

Sweden

United Kingdom


Starting a Support Group

Other Information

Patient Travel

Charitable or special fare flights to research and treatment sites, hotels, motels and other lodging near medical centers


Government consumer health information

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Translating documents into other languages:

  • Babylon translation program, free (English to Spanish, German, Portuguese, French, Italian, Dutch, Japanese, Hebrew, Chinese)
  • Free Translation (English, French, German, Italian, Norwegian, Portuguese, Spanish), text or web page
  • Google, Translate Web Pages Automatically, a new translation feature (BETA). Using machine translation technology, gives English speakers access to pages published in Italian, French, Spanish, German, and Portuguese
  • iLoveLanguages Page (formerly Human Languages Page), dictionaries, translation programs, cultural resources (Spanish, German, French, Russian, Vietnamese, sign language, other)
  • Language & Translation Center, Martindale, English to Other Languages & Vice Versa
  • Translation service, AltaVista Babelfish (Spanish, French, Italian, Portuguese, German, English) - dictionaries, translation programs, cultural resources for Spanish, German, French, Russian, Vietnamese, sign language, etc. etc. etc.
  • Spanish Genetics Resources
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    Other Resources


    Search

    GROW (Genetic Resources on the Web)

    Genetic Disorder Information on the Web, Department of Energy (DOE)

    Search the University of Kansas Medical Center Genetics Site for more resources

    Searching the web / search engines

    Medical World Search

    Search for

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    To locate a genetic counselor or clinical geneticist:

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    Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

    Genetic Conditions & Support Groups | Genetic Societies | Clinical Resources | Labs | Clinics | Genetics Education | Careers | Cytogenetics | Genome Centers | Genetic Computer Resources | Professional Education | Diversity | Advocacy | Glossaries | Advisors | Software | Disclaimer | Privacy | About | FAQ | Suggestions & Feedback | Search

    Genetics Education Center
    University of Kansas Medical Center © 1995-2012
    Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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