Goldenhar syndrome
(hemifacial microsomia,
oculo-auriculo-vertebral spectrum, OAV spectrum, facio-auriculo-vertebral spectrum,
FAV, Goldenhar-Gorlin Syndrome, first and second branchial arch syndrome, oculo-auriculo-vertebral
dysplasia, OAV spectrum)
- Goldenhar
Syndrome Support Network Society
- Goldenhar Syndrome Support Network
Society
- 9325 163 Street
- Edmonton, Alberta T5R 2P4 Canada
- Email: support@goldenharsyndrome.org
Web site: www.goldenharsyndrome.org
- Goldenhar Syndrome Research &
Information Fund
- P.O. Box 61643
- St. Petersburg, FL 33714
- Phone: 813-522-5772
- E-mail: gsrif@tampabay.rr.com
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